Breichiau mam sy'n dynn amdanat(Mother's arms are tight around you).

Cymru
Blue Voices Member

Nick died tragically early in January 2015. He was 22 years of age. Nick was part of the usual less than perfect family; with brothers, cousins, aunts, uncles, grandparents, friends and various others who loved and confused him with equal measure.

As a child Nick was diagnosed as having ADHD and later this was clarified as Asperger's syndrome. This meant that Nick's experience of the world was more confusing than for most of us, as the analytical stream of his brain and the emotional stream were less interconnected.He was to experience learning difficulties, his parents' divorce, his mother dying much too soon, having to take what work might be offered and various tribulations of life.

Nick had a powerful memory. Before he started school he could name each of the Thomas-The-Tank-Engines. But while he could place one or two of his toy trains away in his toy box, when faced with too many he was unable to comprehend a solution. As an adolescent Nick mastered catching after back-flipping at trapeze.

He had abundant patience, which he drew on when working as a personal care attendant. He cooked meals for his brothers and father. Nick enjoyed drawing, as did his grandfather and great-grandfather who shared a family curse of depression. Nick could be maddening to live with; he might tidy up but not completely, staying up late and expressing decided opinions. He often preferred activities that were familiar, with people he knew; especially his brothers and cousins.

He joined a drawing group at a burlesque club, and few months ago went to the Russian Film Festival, with musicians, dancers, vodka shots and pretty girls. Nick had sought medical advice on his own initiative about the increased anxiety he was experiencing. He took the prescription medication he was prescribed. He accepted a referral to a clinical psychologist and did not miss any appointments.

Nick had also enrolled in a TAFE course in bakery. He had not been shy about early hours, hard work.

We cannot know what was in Nick's mind on the evening he died and why he so hastened into this good night. His family is earnestly reflected on how we might have better supported Nick.

Nick is buried with his mother.

Breichiau mam sy'n dynn amdanat(Mother's arms are tight around you).

28 Replies 28

Cymru
Blue Voices Member

Doolhof, Nick was quite interested in history, as are his brothers, myself, his grandfather ... it is a boy thing. We often chatted about such around dinner table. I had a particular interest Russian history and culture. Nick was the only one of my sons who would watch movies with sub titles. Sometimes we'd watch movies without sub titles. The bad guy is always in black, the second prettist girl will die ... we could follow the story. Or more importantly, Nick was not distracted by the absence of words.

My former partner had taught him to wash clothes ... he would correctly sort colours and remove stains. Much better than I.

Those with asburgers have normal intelligence but interconnecting with the outside World is difficult.

He had dealt with a lot in his life.

Cymru
Blue Voices Member

My youngest is 21 in a couple of weeks. Planning his birthday is a help.

I talk with the two of them as to what might be best. They went withmy idea to have it at a pub ... there is unfortunate conflict with the family and we figured folk will be more comfortable and less likely to missbehave in public.

My partner says I need to plan a speech. That will be a challenge ... how to speech on behalf of his mother and brother in a way that uplifts.

I'd value suggestions.

Gruffudd
Blue Voices Member

Helo Cymru,

Thinking of you and Nick too. I admire how you honour his memory, and continue to be there for the rest of the family...

Cymru
Blue Voices Member
Thank you.

Doolhof
Champion Alumni

Hi Russell,

Hope it is okay to address you by Russell. Seems a lot more personal anyway.

I was just thinking about your son's 21st Birthday. You mentioned you were having it in a hotel, sounds like an excellent idea. Will you be having a private room?

I have a thought regarding your speech for the 21st. Recently we attended a 50th where the family had put together a "movie" of best wishes they showed to us all. Now I am not the most tech savvy person out there, so I have no idea how that works!

Would it be possible to pre record a message, include family and friends, then on the night, you can present him with this.

Another idea may be to record a message for him that you will give to him in private, or maybe write him a letter he can read when he is ready.

If you work on the speech over a period of time, it may not be too painful. Trying to add a bit of humour if possible will certainly help.

Family gatherings can be interesting can't they! I am sure a lot of us have stories we could share. Some hilarious...after the event and some down right disturbing. Ha. Ha.

What ever you plan Russell, I am sure your son will appreciate it.

Nick sounds like a great guy.

Friends of ours have a son who has Autism and Asperger's. His memory is phenomenal. Once he learns something it sticks in his mind. He is a great young man of about 18.

Thanks for sharing Nick with us all Russell.

Cheers from Mrs. Dools

Cymru
Blue Voices Member

Thank you for your comments and support in cyberspace.

The 21st plans are coming together. I order a large chocolate cake yeasterday, and met again with the pub manager to work out how best to set up the space.

Oh, I'm not sure if I was clear. The party for my youngest son. However, he, my eldest son and I talked how we felt it could also be aid to comfort and healing within the family. Nick ought to have been there. He would also have been helping me organize things too.

I have the support of my partner and a couple former(they knew my sons well) partners and my friends. It is my own family and my sons mothers family that are the weak link. This distress me ... it is pointless trying to work out where the division arose. Each has their perpective. My sons hated it. Eg, I have a RSVP from my uncle (84) who lives interstate and sent aplogies (he is grey nomading) and my brother in Perth. But no other family members have let me know if they are coming. I think they will ... I know I create discomfort for them. But I'm sure they want to see my son. My sons and I settled on a pub as being a public place they ought to feel less drama than if at a home.

And short speech that will if not unite, at least create no more division.

As I'm sure you realise I wish Nick was here so much ... he was a great help with these problems. And he was suppose to have lower relationship skills. I think they were higher than most due to how he saw the World.

warm regards Russell

w

Hello Russell

I'm responding to a question in an earlier post, tips on what to say in your speech. I think you will want to acknowledge Nick at some point. Also I am a little confused about how many sons you have other than Nick. Is it one or two?

If there is a third son you could mention his and Nick's name together. e.g. Nick and (John) wish you well, or describe a memory in which they were all involved. It may be easier for you and less "in your face" for others, while keeping all the boys in the family, so to speak. Make it a funny occasion. Everyone may not laugh but it will certainly help to ease any tension.

It's a great idea to go to a pub. Apart from anything else there will be no washing up. And I agree it should lessen the risk of noisy arguments etc. I did have another fantastic suggestion for you but unfortunately it ran off before I could nail it down.

I am being a little flippant but I hope you know I wish you well.

Mary

blondguy
Champion Alumni

Hello Russell, I lost my older brother when he was 22 in 1982. If I had a speech to write I would know my big brother wouldnt want me to be very sad as he only wanted happiness for others and himself.

My kindest thoughts for you Russell

Paul

Doolhof
Champion Alumni

Hi Russell,

Just to clarify, the 21st is for your youngest son, is that correct? Have you been talking about the party ideas with him or just with your older son? Where does/did Nick fit in with the siblings? Was he the middle child, the oldest or youngest altogether?

Finding ways to include Nick's memories is very special, like Mary mentioned, a little humour if possible would help.

I'm not sure if you can do a lot to minimise the family divisions, at least having the party in a hotel will help. I have learned there is no way I can control another person's behaviour. I can try to influence them, but don't have the powers to get people to do as I desire them to behave.

Work on doing what is best for your son having the party.

Chatting with the staff at the hotel will help with your plans as well. They will have some ideas on what will work best.

I love chocolate cake! Better still for me is a Jaffa mudcake. Yum.

Hope your speech ideas on coming on okay. Can you share your thoughts with your older son and see what he thinks? Is he planning a speech as well?

Wishing you all the best. I sometimes find that once an event is over, I wonder why I thought so much about it happening in the first place!

Cheers for now, from Mrs. D.

Cymru
Blue Voices Member

Nick is the middle son

I was going over photographs to make a collage for the party. I thought a dozen or so images, including Liam with his mother and brother. I sure you could imagine this wasn’t easy. I wanted someone else to do it for me. I wish I could post something here to show what I found.

My partner helped me pick out a good watch today. I've given each son a watch for 21st. Again, it created mixed feelings. But it is a nice watch.

Re: a short speech. I had picked a set of novels at a school fate when Liam would have been 7 or 8. I kept them to give him when he was 21. I read the books alloud to my sons and Liam had quite like them. These ones were in good condition. The aare a boys own adventure with teenaagers in space, giant gold fish attacking space ships and other ridiculous things.

The twist is a resounding father and son theme throughout the tale. The hero is raised by a stodic father, looks up a teacher a boarding school, spacevship captain, and in turn becomes a father figure to other children. Those with complex relationships with their father like the the story. Liam liked the story. That's what I'll say.

And you, my father, there on that sad height,
Curse, bless, me now with your fierce tears, I pray.
Do not go gentle into that good night.
Rage, rage against the dying of the light.

Dylan Thomas