Hey, I have suffered from severe health anxiety for the last 15 years. I
have had so many tests - Constant blood tests, MRIs, CTs, ultrasounds,
EMG, nerve studies, you name it I’ve probably had it at some point. I
get one part of my body checked out,...
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Hey, I have suffered from severe health anxiety for the last 15 years. I
have had so many tests - Constant blood tests, MRIs, CTs, ultrasounds,
EMG, nerve studies, you name it I’ve probably had it at some point. I
get one part of my body checked out, feel good for about a week after
the results come back clear and then it’s almost like the anxiety shifts
into a different part of my body and new and equally scary symptoms will
appear causing me to go down another rabbit hole searching for the
problem. I know why I have this condition. Both my mother and father’s
cancers were misdiagnosed for many years and sadly resulted in my
mother’s death. I have a massive mistrust in the medical system and
often feel that I’m not being heard. Both of my parents were told their
symptoms were ‘just anxiety’. Which is what I always get told and is
probably true for the most part. However I feel like my adrenals and
nervous system are finally shutting down due to the decades of stress
and trauma. I suffer from chronic muscle twitches, weakness in my arms,
numbness, burning, tingling in back of head, dizziness and vertigo,
weird sounds in my ear, blurred vision and other strange eye sensations,
muscle stiffness, chronic digestive issues, shaking, dry mouth, dry eyes
insomnia and many many more things. But lately it’s the muscle twitches
and weakness that are new and really really frightening me. I have daily
adrenaline rushes and I don’t sleep well at night. But I’m so very
scared I have ALS. I have seen a neurologist who doesn’t think I present
with typical symptoms but obviously if I’m in early stages this is hard
for her to be 100% sure of. The fear about this is so debilitating. I’m
working with a great shrink and mindfulness coach and I do have some
good days but sadly more bad days where I see no future. The
loneliness... Just wondering if anyone else out there gets muscle
twitches and weakness? And some positive stories about when that turned
out not to be ALS would be so helpful. Thanks