- Beyond Blue Forums
- Caring for myself and others
- Supporting family and friends
- Adult Asperger’s son with chronic OCD
- Subscribe to RSS Feed
- Mark Topic as New
- Mark Topic as Read
- Pin this Topic for Current User
- Get Updates for this Discussion
- Printer Friendly Page
Adult Asperger’s son with chronic OCD
- Mark as New
- Follow Post
- Mute
- Subscribe to RSS Feed
- Permalink
- Report Post
Hello Community,
My son is in his late 20’s and lives out of home. He has Asperger’s and now has debilitating OCD which ramped up when his grandmother convinced him to come off his medication when he was still living with me two years ago,
since then he has moved out and has lost his job so I now support him financially (which is an enormous struggle).
He is back on meds. I’ve put him on several waitlists for Psychiatrists but it’s a long wait. Meanwhile his GP is on board to introduce antipsychotics but my son is reluctant to take them. He tried one type recently and he wet himself overnight so now taints all antipsychotics with the same brush.
He refuses help, he won’t cook or eat in his home, washes 6 loads of washing per day, and uses around 6-8 rolls of paper towels per day. He has suicidal thoughts and has given up hope.
Ive been through the hospital system with him over the years and they just turn us away…It seems unless you are psychotic when presenting (even when police have been called) you are turned away with a mental health number to call and that’s it.
Our system is flawed so even if I tried to “section” him, it’s highly unlikely he would be admitted.
I don’t know what to do anymore.
He has been to the OCD Clinic twice now in 2020 which helped, but since coming off his meds he has plummeted.
it’s agony seeing him deteriorating and I’m chewing through my savings to basically keep him alive. He asks for money constantly as he only eats take away food in his garage. His garage is also full of garbage bags of paper towels.
I’ve bought a fridge and microwave for his garage so that he can defrost home cooked meals. But he’s frightened the smell of food will enter his house and “infect” his belongings.
Every time I talk to him about helping himself he shuts down. As I know ultimately he has to want to get better, but he doesn’t have the willpower.
I know giving him money is enabling him, but I’m just trying to keep him alive.
He wants to work but he is at such a wretched place mentally he would not be employable.
I’ve found a good employment agency nearby to help people with disabilities but he has to ring them, they won’t accept me as his advocate, and of course, he won’t ring. It’s always “I’ll do it tomorrow”.
He was knocked back for NDIS years ago so I’ll try again, but I’m not certain that will be successful either.
I feel so trapped.
I know he’s frightened of getting better as in his mind that means letting go of control. I understand OCD and it’s horrible mechanisms.
I feel like I’m just waiting until he either takes his life, or bottoms out so badly he somehow finds the courage to say yes to help.
- Mark as New
- Follow Post
- Mute
- Subscribe to RSS Feed
- Permalink
- Report Post
Hello and welcome to the forum.
I can tell from your words and actions that you really love your son and are doing your very best to help him. He is so lucky to have you.
I know from my own experience how hard a job you have. My daughter also has OCD, and we have walked in your shoes—turned away from emergency departments in times of crisis and desperate need, and left to figure it out on our own. I know how hard this is for you and I’m sorry that you have to go through it.
My daughter also sought treatment at the OCD clinic (not sure if it’s the same one) and it was a turning point for her. It’s a long story but she hit rock bottom after a year of spiraling down and finally agreed to try their program. As a previous patient, I’m wondering if you could contact them for advice?
Your situation is a little more complicated by your son’s Asperger’s, and I wonder how that condition could be making things more challenging. I’m thinking of “black and white” thinking being a hurdle you just don’t need. Do you think it’s OCD preventing him from seeking help or could it be something else?
I have a couple of other thoughts that might be helpful …
From my experience, I think your son may struggle to hold future employment until he’s able to put some limits on his OCD. Maybe not much point in pushing that now. I’m wondering if you think it would be possible for your son to move back home with you?
It would certainly ease your financial burden and make it easier for you to try and keep him safe. Is that something you could see happening?
In terms of safety, Lifeline has a free safety app called Beyond Now to help people who are overwhelmed or having suicidal thoughts plan to stay safe. This is something you could help him to set up.
I would also ask to be put on the emergency wait lists for each of the psychiatrists (if you haven’t already) and ring occasionally to gently remind them that you have an urgent need for help. You don’t want to be pushy but I’ve found with regard to getting appointments that it helps to have the receptionists on side.
I would also encourage you to look after yourself. You can always contact the counsellors working the Beyond Blue support line (24/7) for support. I have done this and found it helpful. Try to eat well, get some regular exercise and set aside time each day to do something you enjoy (eg take a bath, go for coffee with a friend or zone out with Netflix).
I am happy to chat anytime and from one mum to another I’m sending you strength and hugs.
Kind thoughts to you
- Mark as New
- Follow Post
- Mute
- Subscribe to RSS Feed
- Permalink
- Report Post
Thank you Summer Rose for reaching out. I didn’t know about an emergency waitlist so I will follow that up. I hope your daughter is thriving now. Thanks again, really appreciate your kindness
- Mark as New
- Follow Post
- Mute
- Subscribe to RSS Feed
- Permalink
- Report Post
Hello again
Good to hear from you.
I recently thought of something that might help you to reach your son (your post brought back so many memories).
Years ago when my daughter was thirteen, severely unwell and terrified of an upcoming psychiatric hospital admission, I made her a book to remind herself of who she really was and why she needed to fight.
I filled it with photos of her living life while healthy—with friends, with family, competing in sport, birthdays, etc—and told her that she had to fight for that girl.
We cried looking at the photos, but she was moved and became more willing to engage.
Thank you for your well wishes for my girl. Yes, she is thriving now. She has finished her studies, is engaged and enjoying her first professional role. Fingers crossed for continued good health.
I’ll be keeping you and your son close to my heart.
Kind thoughts to you
- Anxiety
- BB Social Zone
- Depression
- Grief and loss
- Multicultural experiences
- PTSD and trauma
- Relationship and family issues
- Sexuality and gender identity
- Staying well
- Suicidal thoughts and self-harm
- Supporting family and friends
- Treatments, health professionals, therapies
- Welcome and orientation
- Young people