Caring for husband with chronic illness & blindness How to cope
I am unsure if this is the correct forum to post on.
I resigned from work last October after struggling to cope with part time work, and assisting my husband who had several stints in hospital and numerous specialists visits and I was exhausted which combined with stress exacerbated my depression. When he is well he is fairly independent providing I keep everything in the right place so he can find it. Unfortunately he can no longer help with the tasks he used to do like driving, mowing, gardening & home maintenance leaving a much greater load on me. When unwell the situation becomes physically & emotionally demanding. Other people seem to cope with much larger loads than me.
Just wondering if there any others in a similar situation to bounce ideas and support each other
I understand that Pipsy has a lot to offer.....(sorry just trying to avoid twin posts)....You are obviously well aware that you can have 'home help'...we chatted about this a couple of days ago.
I posted "I didnt know that Pipsy was a volunteer!...but the in home help will not only assist your husband but his carer...his wife.."
I am sorry that you have been reminded 'again' now as per home help....Pipsy has a heart of gold but doesnt cross check her input against previous posts.
I posted on another page that your daughter is a 'Gem'....
I just wanted to see if you were going okay Elizabeth
Hi, I hope you really enjoy your much needed break. It's great you called your son, you have a lot of positive things happening at the moment. As far as reminding you about 'home help'. All I was trying to do was letting you know that the help was available. I don't need re-reading my posts, to remember what I've said. Sometimes with my clients they will ask me to repeat something I may have told them because they need to be reminded how to ask for help. When you have a lot going on, you sometimes forget little things you have been told, therefore you ask again. A lot of my clients have problems knowing how to ask because a rebuff puts them off.
I am not coping at the moment. My husband is very unwell so I can't sleep at night because of him coughing & worrying about the risk of him deteriorating further due to aspirating (from him regurgitating & it going into his lungs) & increased weakness due to lack of sufficient food or drink. Unfortunately both these are very real concerns as they have occurred in the past. His Gp recommended hospital emergency if he deteriorates further as he can't do any more for him but there is no point in going before he really needs to go because sitting waiting to be seen is not helpful for him & they can't do much.
Being sleep deprived means i can't get much done so the two combined with worry re situation affect my mood. I don't need physical assistance it is the worry & tiredness that is bad & no one can fix that. I feel that everything I have tried to do to help improve myself has gone down the drain.