Struggling alot right now

[startingnew]

Hi everyone

i havent been in here in quite some time now but i am struggling alot. 

My mental health conditions are worsening and having several chronic pain and other health conditions everything is so hard. i feel so alone and isolated. the only people i speak to are those that need something or those that i have to support otherwise im just alone and have no one. 

[quirkywords]

Starting new sorry you are struggling.

I know in the past you were struggling with chronic pain. Have you ever had any help with pain management..?

take care 

[Ggrand]

Hello Dear Startingnew 🦋,

I too am deeply sorry you’re struggling so much…are you having any treatment or counselling for your mental health and or pain?….Last year I went through over 9 months of chronic pain and it was unbelievable how hard and how deep it knocked me down mentally…my heart goes out to you sweet butterfly…

Quietly sitting with you, here when I can be when you feel up to talking sweet butterfly…

Love and hugs, with my kindest thoughts and care..

Grandy..

[startingnew]

Hi Quirky and Grandy 💜

These new forum layouts are a little strange but i do like the emoji addition on laptops now! 

Im not sure if i mentioned it last time i was here but i was involved in a severe horse accident that left me unable to walk. its taken a bout year but thankfully i am walking now much better. i have aquired a condition called CRPS and a recent diagnosis of POTS so both of these conditions come with an array of issues. In the last year or 2 now though ive lost my job that i had with the horses, i lost friends and clients and things have just been a mess. Pain really rules my life now and it doesnt seem to matter how hard i try i just cant seem to make or keep friends so its incredibly lonley. 

i got a new job recently but unfortunatley the company closed and now im left with no work again after i resigned from toxic environments so im back to square one trying to find some better work again. i have managed to get some casual work a couple of hours a week which is working ok at the moment. 

my fatigue levels are worsening though and sometimes i spend some days in bed which isnt like me. im always active and moving and now im sleeping excessively because im just to tired or i dont feel the pain or my mental health isnt as bothersome when im sleeping. 

In the last year ive seen so many specialists and spent over 10k in trying to work out what was wrong with all the nerves etc after that injury and have had around 12 hospitalisations between surgeries and symptoms that i couldnt manage in since 2021 including migraine management so its been alot. 

I have started pain management therapy but i guess ive already been doing that for quite some time. recently i found a pain specialist in another state who does telehealth and i go see him in person every 6 months for a proper review but every 6 months i go for a pain medication infusion that goes for a week as an inpatient and its proving to be quite helpful in symptom management these last few months so ive been able to do some work and go for my daily walks again. 

i currently see an array of therapists including massage, physio, exercise physiology, cardiology, neurology, pain specialist and i see a registered nurse ongoing for a compiled management of my medical conditions now that i have so many chronic complex ones. i also see a psychologist each fortnight as well 

its been a really big year for me, one ive had to walk alone without informal supports. its taking its toll thats for sure especially now that im not so busy anymore or i dont have the energy to be busy. 

[Ggrand]

Hello Dear Startingnew🦋,

You certainly seem to be having a lot of pain to deal with, I’m sorry Starts, I can’t imagine how hard that would be, I’m pleased that your getting help from a pain specialist and he is able to help you manage your pain better….and you’re able to do some work and go on your daily walks….that’s a great step forward for you sweety..

Its okay to spend a day here and their in bed, on those days your giving yourself some care, please don’t be hard on yourself for doing that, when my shoulder pain was really bad, I did the same..as you said when we’re sleeping we don’t feel the mental and physical pain we would do if we’re awake…

You seem to be doing everything you can to help you through all the pain you have, being self aware and pro active is a good thing to be able to do, so please try hard to never give up on getting the help you need…. 

Thinking of you with care and kindness Dear Startingnew.. gentle hugs sweet butterfly.

Grandy..

[yours_truly]

Hey Startingnew,

Welcome back to the forums. I know you mentioned that you were in a horse accident. I’m so sorry to hear that you are in so much pain. Back to back surgeries and 10K worth of medical assistance is surely to be very stressful and constant. I’m sure you’re feeling like there’s just no end to it all and it may be feeling extremely overwhelming. That is all normal and very much expected. 

I cannot speak like I know what you are going through, and that may limit my ability to provide you support. Hence why we always recommend that you find yourself a reliable support system. Whether that be a person that you trust and know you can rely on, on it may be a support group, or an online chatting group. Whatever it may be, it is helpful to get things out and not just bottle them up inside. 

Trauma and medical conditions go hand in hand, each one worsens the other. I am relieved to hear that you are seeing a psychologist because it is essential to your wellbeing. I might also recommend that if you are feeling alone you see if there are support groups running for people who have been through similar situations. Your local hospital may have some, or there may be some that beyond blue holds. 

You are never alone, you are never isolated. That feeling is not permanent and it may help to know that there are options to get you out of that sinking mental health nightmare. My advice to you would be to reach out, which i’m so happy to see you have started doing. 

Congratulations on your progress regarding your legs, 

Yours_truly

[Serenity22]

Hey there 🙂

I am in a similar boat to you. It feels like there’s holes in the boat and it’s sinking? And you need to use your energy to ail out water constantly but that hurts physically, so you don’t get anywhere. I’m thinking of you. I’m in a spot of bother with pain myself right now so I’ll keep it brief. But I want you to know I’m there with you somehow xox

[startingnew]

Hi Grandy ❤️

It has been really hard. i have a support worker that i pay privately currently to help me for some things but in the process of applying for NDIS.  its been really hard with her though, she often gets frustrated at me because i dont say how im really feeling or anything like that and she feels i dont give her any credit. 

i dont know what to do. shes a good person but i struggle to open up to anyone. 

the pain is a majoy factor of my life. im often coming from my bed to lay on the lounge because of my comfort levels and every thing. 

i just feel like my health is really declining now and i dont know what else to do to stop it 

thank you hugs are appreciated xoxo

[startingnew]

Hello Yours Truly and its nice to meet you. thank you for replying. 

it has been a very expensive journey and a tiring one at that. im currently applying for NDIS. i really could use the supports but im basically working to pay for the supports i receive now. 

i was on a social media group a couple actually but i found the group to overwhelming-basically people that didnt want to help themselves and just constantly complained which obviously they are entitled to but constant negativity doesnt fix the illnesses either so it was getting to much to constantly see and talk about. 

i pay for a support worker currently out of my own pocket but i cant afford it really but i also need the support. 

i am very isolated. i dont have family support, and i have people around me but they dont really lke being around me unless im useful. ive put in so much effort to make friends and engage with people but it only leads to heartbreak. its getting to stressful and tiring now for me to do 

but im glad i have some supports here

[startingnew]

Hi Serenity, nice to meet you

yes that is exactly what it feels like, its a tough one to feel. a never ending battle of physical and mental health