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- I'm broken, not just my heart
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I'm broken, not just my heart
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Hi Mares
I am feeling so sad for you because you need the love and support and help. Gee I wish I was your mum - I would take care of you right now. I would give you space but look after you; give you hot chocolate, tea, cook your special meals and maybe take you out for walks.
I hope you can see this other psych next week. You really anyone now that will help you.
Take it day by day and reasurre yourself that we are all with you, imagine us all there with you, talking, eating, drinking singing maybe even dancing! or just sitting together and being friends for each other.
Be kind to yourself, pls take care and I am thinking of you this week.
Jo xxx
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Hi Mares,
Wow, I can't believe how you can do that ... provide that brilliant post on a phone. And the detail.
I'll leave off comments about your mum's 'tough love' ... but I think it's embedded into their psychey at whatever age your mum is ... or folk of that generation. They just say, 'come on cheer up', 'there's so many people worse off than you' 'what have you got to be depressed about'; etc etc ... oh great Neil ... you weren't going to comment on this.
It's damned awful that your new psych can't see you. Did they postpone it to another time/day? Do they not realise how important this is for you? But it sounds like they didn't offer you an alternative day and time! That's appalling.
I tell you what though Mares ... with the information that you've gathered from the mental health support systems and that is from speaking directly to professionals involved, this kind of information has got to be forwarded to people who can make things happen.
"Dear Beyond Blue, are you able to cut out some of Mares's comments from above and forward them to ... gee, I don't know ... but to me and I'll be so many others, it just doesn't seem good enough. When sufferers are in a shocking way, it's so distressing to hear about all the dead ends they are experiencing with trying to get appropriate support to assist them. And this is for people who are in need of extreme critical care and it just doesn't seem to be happening.
For Mares and for others who are in this dire situation, it must be frustrating as hell for them to get fobbed off so often. It upsets me to read about it. I just wonder what we can do about it.
End of rant to Beyond Blue - thanx for reading."
Back to my friend ... Maresy, I know GA mentioned something along these lines but is it possible to just tell your mum that today, you simply cannot go anywhere and you will stay home and look after things.
You did mention that at least you're in a safe place and I feel comfortable in that knowledge.
I have my psychologist appointment tomorrow (Thursday - the dreaded, 13th Feb ... it's one of my awful dark days of the year - at 3.20pm, all those years ago, I stuffed up and ....... yeah, enough about me), but I am looking forward to my appointment. You oughta see the printed pages of stuff that I'm taking along with me - just as references for how I've been travelling.
Mares, I'm so pleased that you continue to post and it's great to hear from you. You have so much support here and so many wonderful kind people here have you in their thoughts.
Take care my special friend
Neil
ps: I've said it before and I'll say it again ... if ever a group of us were to meet, I would most definitely burst into tears. Yeah, that'd be a great positive first impression wouldn't it Neil !!!
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My wonderful, beautiful friends-I miss you so I can't help taking the time to type on the small iPhone screen. GA, Jo & Neil thankyou so much for your most recent comments. You are all amazing people. I've been wondering how you are. Neil- I know you are seeing your Psychologist today-and I also know the significance of today in your life. I've been thinking of you all day. And I am sending you a big hug. I'm holding on & just wanted to remind you that you remain in my heart & thoughts. Love Mares xxx
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Hi Mares,
Hope things are a little brighter for you today.
We will be arranging forum meetups as part of the roadshow, watch this space. It would be a great thing to have happen - one of the aims of the roadshow is for people to make connections with support that last, I would love to see the wonderful friendships that have developed online here to spin off into the real world for those that want to.
Neil's comments about service gaps: this is a difficult area. beyondblue isn't resourced to take up advocacy for individual cases, but stories like Mares' are very valuable as part of the bigger picture in pushing for reforms in mental health care and hearing peoples' experiences does help inform our work in this area. This is slow going, I know it doesn't help now, and that is frustrating and upsetting. beyondblue does believe there is an urgent need for mental health system reform and last year developed a 5-point plan to drive change, which you can read more about here. Please have a read and feel free to start a new thread about this, it's a really important discussion.
Mares, another avenue which I understand you may not have the strength to take up right now is to investigate whether you have grounds for a complaint with regards to the treatment you have received. There are systems in place for consumers to do this, and it's important that these stories are heard by the right sets of ears so that change can happen. There's a useful consumer how-to guide about your rights and options on the ABC website here.
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Hi Chris,
How will we have forum meet ups if we don't know which city/town other members are from? I would really love to meet Mares, Neil, Nes, Geoff, GA and others but don't know where they are from.
I think it will be a fantastic idea to meet up with forum members. I would fly interstate to meet some if I had to, because I have formed a bond with some of them and they mean a lot to me and have helped me a lot. Just to be together would be amazing.
Jo
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Jo remember we worked out ACT is halfway from me & you to see Neil. Not sure of others but I'm like you-I'll fly to meetup if necessary. I'd be so excited, might be my first happiness in long time. Neil will be a bit nervous I think but we will just both hold his hand. I HAVE to meetup. This is like family. Love Mares xxx
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Mares-
Anytime. You are a beautiful strong person. Never forget that or let anybody tell you different.
GA
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Hi Jo,
While the community rules don't allow for sharing personally-identifying information, saying what city or town you live in is fine, and it is ok to use the forum to co-ordinate meetups informally at the bus, but we will also be organising a few events specifically for forum and blueVoices members (anyone reading, if you don't know what blueVoices is please check it out here).
Here is a link to the thread I posted with the tentative travelling schedule for the roadshow, feel free to use this as a discussion point for co-ordinating travel and meetups. As we get closer to each date, there will be more information about specifically where the bus will be and what is happening.
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