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Giving up
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For the past ten years my health has been deteriorating. With debilitating symptoms which suggest problems with my nervous system such as MS. I have been seeing specialists and had all these tests im so exhausted. Saturday just gone i had an MRI. Tuesday my mum was taken to hospital and put in intensive care due to seizures and this morning I found out there is a lesion on my brain. My mum is a carer for my grandparents who are in their 90's and living in their own home. My partner has no license at the moment and has just left his job to help me. I haven't been to work for the past 2 weeks, have no sick leave, and am running out of the last of my annual leave. This is all too much and im looking down a long dark tunnel. I have just turned 41. I now need a walker to help me walk. I have been urgently referred to a neurologist to hopefully receive a diagnosis but the way the health system is and from what ive experienced with other specialists so far, i could be waiting months. Without a diagnosis I cannot receive decent support from centrelink. I can't walk properly and its hard to drive but I push myself through the pain because I don't know what else to do. And now with mum in ICU I'm feeling the weight of the world on my shoulders. How am I going to get money to live and pay rent? My partner has no income and cannot receive any support from centrelink until he gets a separation certificate. The place i am in now and all the belongings inside of it is what I achieved 3 years ago after a physical abusive relationship. My ex was an ice addict and burnt the house and set fire to all my belongings for revenge because I got the strength and support to leave him - So this place im renting now and everything in it is from all my hard work pulling myself out of a deep dark hole . I started with nothing to get to where and how im living today. how am I going to help mum if she is released from hospital, how am I going to look after my grandparents. Yes my grandparents have someone come in a couple of times a fortnight but if anyone knows the system there's waiting lists for everything and they can't do it on their own. I recently lost my dad and the last memories I have if him was seeing him in a coma in ICU. Now with my mum it's dejavu all over again. I was also recently trapped in my workplace when the fires tore through the wimmera recently, it was too late to evacuate. I thought i was gone during that and thats still in my thoughts too. What am I to do? Seriously contemplating running away and having terrible thoughts. I cant do this. All throught my life I've received counselling, therapy for complex ptsd etc. But all the diversion techniques, self awareness, distraction, grounding techniques aren't working
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Hi, welcome
Although we are restricted in practical help I'm hoping I can make a dent into your need for support.
Firstly, can you and your partner live with your grandparents for the near future period and rent your house out? That could lead to income from them for care and some from rent to keep you both afloat for a while.
My daughter was diagnosed with MS last year and fell pregnant that week. Eight years ago she was pensioned off from teaching due to mental health battles and was suicidal. I'm a motivator with bipolar etc and taught her to rebound in a positive frame of mind shortly after any life dips, and the MS was such a dip and she'd ring and tell us the endurance required for all her tests as you mentioned.
Being positive has its limits. With all your challenges of course you will be distraught and wonder how you'll manage. My answer to that is- think radical. Think along the lines of selling the house, buying a campervan for short term giving you mobility. All these things need thought and they should be on the table to brainstorm. Gather all information from sources like council services (food boxes). In hindsight your partner leaving his job might not have been ideal, thats done now, we move on, he can look for work and get motivated to get that separation certificate (I havent heard of that before).
I know you cant get Centrelink to move faster and they have their requirements, my wife and I waited for 3 months after I mentally collapsed at 57yo, no income. It's a terrible feeling. So what is the best answer to that? Well, as long as you are doing your best that is good enough. A relative of mine had to declare bankrupt in such a situation but once he realised that it only lasted 3 years and in that time he could still get some credit for things like white goods, he was ok, recovered and eventually like me he bought a kit home in a country location not unlike your area.
A crisis doesnt last forever, that isnt a consideration at the time so I'm planting that thought in your mind now, you'll survive this but as I said think radically. There is a growing number of people in Australia now that are facing similar challenges that have to call on organisations for help but you paid your taxes and such crisis are unexpected. You are not to blame.
I'm 70yo and at 40yo I had to leave the family home due to being abused. I went into a caravan park in my 3.5 metre caravan, had my young kids every second weekend. It was emotionally tough. But I dug deep, fought my way back and you can too. So when you push your walker think that at least you're on your feet, when you receive a bill and cant pay it say to yourself "well I cant manage it atm, it will have to wait" and when your partner worries about finances tell him you will both be strong and it will work out. Worry wont fix it, patience and ideas will.
You escaped an abusive relationship and the aftermath of that a few years ago... you will succeed this challenge as well.
Reply anytime. I hope that has helped.
"I used to worry that I took 9 tablets every morning until I realised if I had to take one tablet then 8 others with it was in the same motion, worry just creates ulcers"
TonyWK
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