Epilepsy

[Blufftuff]

having suffered epilepsy for over 35 years, I was wondering if there were others who also suffer epilepsy, as would be great to chat, share our stories and encourage one another,

look forward to chatting.

[Peppermintbach]

Hi Blufftuff,

I wanted to say that I think it’s really good that you posted about epilepsy, even though I realise it must be difficult to live with...

While I don’t suffer epilepsy myself, there are other forum members who will be glad for a space to share experiences...

Kindness and care to you,

Pepper

[Blufftuff]

Thanks for that

Yes I know there will be number of people who suffer epilepsy and I know it is great to be able to share and relate to people going through same or similar experience.

I run

[Ardbeg]

Hey mate I have it to going on 25 years, had a lot of trouble this year, I know how isolating and anxiety inducing it is.

Support services and peers are hard to find, I've been in contact with the Epilepsy Foundation to seek some discounted psychological services and per support groups. They are difficult to find. I hope the Foundation staff gets back to me today with details. If so I'll share what I can.

Feel free to reach out to me for a chat.

Best,

Anthony.

[SR2333]

Hi Blufftuff,

I don’t know if I count but I am a person with controlled epilepsy, had my first tonic clonic when I was about 31 and my last when I was about 37 so around 5 years ago. Always happy to chat but. 🙂

[MumTwo85]

Hi,

Not sure if anyone in this thread still sees this. I also am an epilepsy survivor, keen to see if we can chat about how each of you cope with it.

Love and peace to you all.

[geoff]

Hello MumTwo, and a wwarm welcome to the forums.

I'm so sorry you have to suffer from epilepsy, just as I do with 'grand mal' and it has taken quite a while for the doctors to correct my medication, as I used to fall through windows and glass tables, with people thinking that I was intoxicated, but I wasn't and only having seizures.

I am interested to know how you obtained this and how you can cope with it.

Personally, I take much more than the usual dose which is 100mg, while I have 2400mg a day with one medication and another is also much higher and makes me tired.

I can't mention the names because it's against BB rules, but can I ask you, are you allowed to drive a vehicle.

Take care.

Geoff.

[romantic_thi3f]

Hi MumTwo85 and a lovely wave to Geoff 🙂

Welcome to the forums and thank you for joining us!

Yes I have it too. It's absolutely taken its toll on me physically and emotionally. I don't think there's one particular way that I cope, just kept going when I wanted to give up.. I'd love to know how we can support you here.

rt

[geoff]

Hello Dear romantic_thi3f, I am so very sorry you are suffering from this, I don't think I ever knew and hope we can help you with this.

I'll check later on as I am about to log off.

My very best.

Geoff. x

[poida80]

Hey mate, your post is retry old so not sure if you’re still online.. but could probably hear from someone like you today. Like you, I’ve seemingly got ‘controlled epilepsy’ tho I’m only 3months  seizure free… life’s upside down.. black dog biting my arse. I know I need a new frame of mind.. I just don’t know where to find it.. meanwhile everything else, marriage, family & work, are all falling to pieces. How did you navigate this part of your life? I feel like my adversity is so much smaller than so many others’, but they’re all doing a much better job of it 😞