HAVE NO MOTIVATION FEELING SCARED ALL THE TIME

[Purofilion]

I have had Crohn’s for 40 yrs. I am on a lot of pain relief which in the past weeks I’ve increased the dose of but I know I can’t maintain that. I’m retired from work and sick and tired of being sick tired. I’m also scared . I don’t want to get out of bed . To people I smile, slap on lippy, put on decent clothes but inside I’m empty, & scared & don’t want to do ANYTHING. I spend a lot of time thinking it’s easier to be finished. Any advice? Please!! — I know I should put “1 foot in front of the other” but I can’t start that or know how. Because life is attached to the loo or the shower, (I get diarrhoea a lot) I don’t have the ability to make plans. I’m often cancelling .

[Sophie_M]

Dear Purofilion,

Thank you for having the courage to share these experiences with our commuity - they are horrible things to endure. 

I have no doubt that there are many of your peers here in the community that we have a lot of advice and will reach out soon, but in the meantime, we want to make sure you have at least some back up. 

a good start point might be the support teams for chronic illness: http://www.chronicillness.org.au/peer-support-network/

Some general info and conversation supports around Crohn's can be found here as well: Click to Link

Please reach out to us as well - our counsellors and coaches can also find further referrals as well, and just be here to support you: give us a call on 1300 22 4636 or a webchat - click here

Please hang in there - and reach out anytime, 24/7!

Regards,

Sophie M.

[That Other Guy]

I'm sorry life is tough for you. Are there any community groups you could join? Perhaps even online groups for people who share your challenges? I feel like you've ended up pretty isolated and while you're always going to face challenges from the sound of it, making some connections in the real world might be a thing that makes it all easier for you?

[Purofilion]

Thank you. All this I know but the pain I experience, the lack of wanting and being able to get out of bed makes me or causes me to have a degree of loneliness. It’s really all abt the chronic pain from Crohns for 40 yrs. I have a family-I’m fortunate. I have friends who text but my GP talks about his renovations!! So, if I need to increase my pain relief, he’ll say “Medicare won’t allow me to and you’ll get in trouble.” Pain and then nerves associated with it cause me not to leave my house.

[That Other Guy]

Sadly the medical profession has a tendency to ignore women, especially when they are in pain? try changing doctors?