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Staying/Getting/Doing Well – Moving goalposts or fixed target?
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Hi, this is my first post, though I have been reading the forums for some weeks. I’m probably expressing myself badly when I say that I have found reading about other people’s journeys reassuring. Finding a community of people who “get it” even when they have a wide variety of experiences and lives lived is not something I thought I would ever find.
Though people talk about getting well & there is a section Staying Well, I’m curious as to what this actually means to other people and how they manage their expectations. I noticed some people refer to being well as ‘being like themselves before they got ill’, whilst others don’t express an exact aim.
My idea of being well has changed over the years. I was first diagnosed as an 8 year old child back in the late sixties. The doctors told Mum that the voices in my head & the sudden crying bouts were because I suffered from ‘nerves’ & I was given meds to calm me. Of course such things were not discussed back then & I was told not to talk about it to anyone, not my school friends nor siblings, just Mum. For decades after my idea of being well simply meant being able to hide my illness from others.
A number of events in
my life caused my illness to worsen, until some years ago I became so ill I
needed to be hospitalised for my own safety. This lead to my current diagnosis
of Major Depression, Anxiety & PTSD. I’m no longer in that dark place, but each
day is still a battle (though I can now believe in a future). For now only my
siblings & one friend know about my illness, though some things they still
don’t know.
So, what does ‘being well’ mean to me, it is ever moving
goalposts. If you had asked me 5 years
ago would I be as well as I am now I would have thought it impossible as I
couldn’t envision a future. If you had asked me last week (during one of my
down periods) I would have said my progress was all an illusion & I was
fooling myself that things can get better.
For now my idea of being well is being able to believe that
things can change for the better, that I will one day be able to manage the
everyday things like housework, caring for myself & caring for my dog &
maybe, just maybe I will even be able to enjoy myself.
Paw Prints
**I took the tip to give myself time to write my
post by writing on a word doc & then paste it.
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Hello Hanna,
Thank you for being here...
I'm sure her sons have been doing everything possible for her... they became very good at negotiating the public health system over the many years their father was very ill... I trust them to act well on her behalf... so I will give it a week or so before I ring them again.
I was so upset & angry yesterday that she has been put in this position... I spent a lot of last night crying & trying to come to terms with all this... My being so distressed won't help her so I have taken the meds I have that are to be taken to help calm me... I'm telling myself today not to expect the worse... there is a 50/50 chance it is benign...
She is the person I have most missed seeing since covid started... I'm keeping everything crossed that restrictions will lift this month & I will be able to see her in person soon.
Paws
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Hi Paws
I don't know where she has the tumour and I'm not sure from what you've said whether she's at home or in hospital and what if any treatment has been offered to her.
If it's benign they may want to just watch it from time to time.
I'm glad you've taken something to help settle yourself down. It doesn't sound as if there's much more you can do at this stage.
I'm sorry it's such an anxious time for you but if she's comfortable and has support then probably best for you to relax as best you can until you know more.
I'm picnicking by the river today as it's quite hot and there's a nice breeze off the water.
Sending you calming thoughts!
Gentle hugs! 🌿🌹💞🥀🌱
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Oh Paws
I’m sorry to hear you’ve been unable to see her and now this. So very unfair. I hope the medication helped to rest your mind a bit and you’re managing ok. Lots of cuddles with your lovely boy.
Hugs, Katy
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Hello Dear Paws...
I am really sorry hearing about your beautiful friend...and really hope that you can talk to her soon.....My heart aches for you...
Her sons sounds really responsible people and I am sure they are doing everything they can to help her and care for her....
I think it’s really unfair for the professionals to say that someone is too old for a biopsy....Who are they to judge....I mean a life is a life regardless of age...I am really sorry if I said wrong....It’s just not right...
Paws...It is so understandable that you have been crying for your dear friend..,,and I’m pleased to hear that you took something to calm you down....I wish so much I could reach through the screen to give you a caring hug...
I hope you can get some sleep tonight dear Paws...
My thoughts, care and love are with you and your beautiful friend..
Warm hugs lovely Paws....and everyone,,,
We are all here for you...if you need to talk..
Grandy..
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Hello Hanna, Katy,
After spending the afternoon with Woofa on my bed... I'm a lot calmer now & I have had time to think it all through... whilst I still think it stinks that she wasn't given a choice about treatment... I'm sure from previous conversations we have had that she would choose to refuse any treatment even if they had offered it...
On a happier note... my younger sister rang to tell me to expect a surprise present in the mail... we don't do birthday or christmas presents so this is a "just because" gift.
Paws
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Hi Paws!
You sound a bit brighter and that's good! Maybe you needed some quiet time with Woofa.
A surprise present sounds exciting!
I'm glad you're feeling improved.
I had a lovely long chat with an old friend on the phone this afternoon as it was too hot to go out. Then an evening stroll by the river. Rain forecast all week now!
Chat tomorrow hugs!!! 🌱🌿🌳🍃🌼
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Hi Paws
Pleased to read you’re feeling a bit better about things. And I love the idea of a just because gift. How thoughtful ♥️
Gorgeous day here and I’m about to take a thesis break and go pot up my new plants. Yes, more! Haha
Big hugs and snout kisses. Poor Stormy’s legs stopped working yesterday while we were out walking. I had to sit down and cuddle her on my lap as there was no way I could carry 20kg uphill. Lucky they got going again. How’s Woofa going with the change of season?
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Hi paws
If the local state MP here is no good - and in fact has left - is there a shadow local Mp?
I'm trying to work out who I can write to about the lawn mowing costs and overhanging dangerous tree branches.
If the local mp is no use I wonder who I can write to. Any help would be appreciated!
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Hello Dear Paws, Hanna, Katy and everyone....
Just popping in Paws to do a check in to see how your going...
If you need to talk Dear Paws...please know we are all here for you, with our care and love...
Take care if you beautiful friend..
Grandy..