Changes to PBS affecting people with bipolar on abilify medication

Bee12345
Community Member

Hi all,

My sister, is on disability support pension. She has bipolar disorder. Before finding the right medication was hospitalised in a psychriatic unit for several weeks, 6 years ago. She has been stable and managing well. She is 7 months pregnant, and although they do not advise for people to remain on her type of meds while pregnant, her psychiatrist has stated it is more risk to her mental health if she comes off them, so she has had a lot of monitoring and extra appointments and thankfully all progressing well.

It is extremely distressing to her, hearing from the GP that her medication, which is prescribed both for bipolar and for schizophrenia, as from 1st July is only covered on the PBS for people with schizophrenia NOT bipolar. Clearly this is medication she needs which will cost minimum $99 a month or $95 purchsng the generic brand rather than $6.

Its unbelievable one day its $6 then $100, without any consult, advice or discussion prior to her about alternatives. it was never her choice to go on this medication, it was her doctors after several weeks of trial and error when in hospital but it has helped.

She is on disability support pension, a new mum, adding to this is more financial stress of an essential medication. She is not in a position to go into a psychiatric unit while pregnant to find other medication. It will put her and her baby at risk doing so.

Im reaching out to see if anyone else is facing this issue at the moment?

 

2 Replies 2

quirkywords
Community Champion
Community Champion

Bee

what a lovely sister you are..

I have bipolar but am on a different medication.

I would have a look at the black dog institute once or ring them up.

Others may have different experiences and be able to help you

topsy_
Blue Voices Member
Blue Voices Member

Hi Bee

Another thing your sister could do is check out if the hospital has an Auxiliary. Where we live there is a hospital auxiliary and an auxiliary for the mental health section of the hospital. Their primary aims are to raise funds to assist patients in many differing ways. I know cases like your sister’s have found assistance this way.

Also you could get in touch with your local & federal members. It’s their job to work for their constituents. This problem would be affecting a lot more people than your sister.

At the moment I am reducing a drug which used to be covered for depression but now is only for bipolar & schizophrenia. Luckily all is going ok. It too is very expensive.

I wish your sister well & hope everything goes well for her and her baby.

T.