Acceptance of your disorder

Autumn77
Community Member

Hi all,

I have a SchizoAffective disorder and have recently accepted this fate. A few things woke me up.

The first one was going off my medication and believing I was ok and could manage without it. I was so wrong. I was ok because of the medication. Had a semi meltdown and now off from work to recover.

The second one was hearing my psychiatrist say, you cannot fix genetics. And she's right. It's genetic. My mum has schizophrenia and so does my brother.

Did you go through this denial? And then acceptance? I'm I going to be stupid enough to go off my medication again? What's you story.

4 Replies 4

quirkywords
Community Champion

Hi Autumn,

Thanks for starting this thread.

I can really relate to your thread.

I have told my story a few times here so I will keep it shortish.

I was diagnosed with bipolar over 45 years ago and spent the next 16 years in denial . There was nothing wrong with me it was everyone elses problem. My life was chaotic.

When when my youngest child was a toddler and I was not coping and with lots of family pressure I started taking medication and looking after myself. I once went off medication with my psych's help for a few weeks, but I got depressed so I realised then I would probably be on medication for life.

I am not sure if I have reached acceptance but I know what I need to stay well.

Quirky

Butterfly_Wings_of_Hope
Community Member
Thanks for your post Autumn.

I live with anxiety and I am having to slowly accept my condition too, so I can relate to the acceptance journey.

To answer your questions, I'm not sure if I have gone through denial as such but I am definitely living in a world of chaos at the moment and I wouldn't be surprised if a lot of my chaotic world is actually due to my own behaviors.

To share a tiny bit of my story, I'm a 29 year old married woman living with Bipolar and Anxiety - I was diagnosed with these conditions between the ages of fourteen and sixteen years old. It's been a very bumpy, windy and twisty road for me but I have a dream to one day be ready for motherhood and I know one day I'll get there if it's "part of the plan" - basically, I have faith 🙂

I'm struggling with my anxiety a little bit at the moment, as my boss has basically kindly suggested that I take some time off to "get a handle on my anxiety" and I'm having to process and possibly accept that I do have mental health conditions, but there is help out there and I will be OK as long as I take the appropriate actions.

I think I may be realizing that I need my medication too. I'm being "weened" off one of my medications in order to fall pregnant so I know all about medication changes and how they can change moods.

Apologies if this reply is too long winded...

I hope you are well wherever you are.

~Butterfly

Alexlisa
Community Member

Hi Autumn,

I think acceptance is definitely a process and doesn’t happen in a straight line. Sometimes it will feel like we take a step backwards into not accepting again. But it doesn’t mean we’re not moving forward in general.

I know for me the hardest part has been accepting that I won’t have the life that I thought I would and wanted. When we’re growing up our society and family help us to build expectations of what an ‘adult’ life looks like - career, marriage, children, owning possessions, etc. The first real struggle I had with accepting my mental illness and circumstances was when I realised I wouldn’t have a career in the field I wanted. It was extremely hard for me to give up on this dream that I always assumed I’d achieve if I worked hard enough. But my mental illness had other ideas. It has taken a long time to accept that and sometimes those feelings of loss are triggered again. These days I’ve accepted in the most part that I’ll never be able to have any career, and even seeing someone on their way to work can trigger sadness in me.

I think grieving is a big part of the process of acceptance. We need to grieve for what we’ve lost and the struggle we’ve been handed. I know that getting some help from mental health professionals can really help to process the thoughts and emotions that come up.

I think also it’s about planning for a life that WILL work for you. A way to shape a life that brings joy and fulfilment, despite it maybe not being in the ways we expected or hoped for. I’ve accepted that my illnesses affect me in a way that means I won’t be able to have a career as a researcher in mental health, but I volunteer here at Beyond Blue and so I feel fulfilled that I’m contributing to the field, in a way that I can handle.

I find accepting medication difficult too, as you mentioned. I’ve also come off mine at different times when I felt well enough to believe that I didn’t really need it. It’s actually a really common issue for getting people to stay on their medication. I too had some terrible repercussions that pushed me more towards acceptance, but it’s still a work in progress as I get in the mindset where I believe that if I just ‘try harder’ then I can be well. We would never think of someone with kidney failure or other physical illness as just needing to try harder, but we become very hard on ourselves in this way. I think part of the acceptance is recognising that mental illness are just as real as physical illness.

Alexlisa

Thankyou for your replies. I really appreciate you sharing and providing me with your experiences. Xx