Feeling anxious with new medical diagnosis

[Kittykat13]

Goodevening ,

So a few weeks back i was diagnosed with a rare degenerative eye issue called PIC.

I had never heard of anything like it.

Basically its an inflammitory condition which created white spots and blurred vision and flashy lights upon closing the eye. There is also a blood vessel behind my central vision in my left (affected eye ) which has created blurring and seeing through water vision.

It has been so scary.i went and jadmy first eye injection last wednesday and i was so scared.i  am also on steroids for inflammation.

Its all so much  right  now..im feeling so sad..and defeated and whilst im doing everything i can to stay positive and keeo going in with life im finding it harder each day to get out of bed.

Im crying alot..i feel.scared and so alone..even tho i have a partner and daughter.

Im exerciisng ..meditating. doing breathwork. All the things that used t alleviate tension are barely working.

Life is just uphill right now and i need some support.

Thankyou for listening

[Guest_43844093]

Hey Kittykat13, that sounds really stressful. I would be really stressed if I got a scary diagnosis like that. It sounds like the doctors are doing their best to treat you. Do you have a good GP or an eye specialist doctor? They would be the best person to have a chat to about your feelings and your fears. They might be able to explain a bit more about your condition so that you can get some more information about your treatment and what to expect. A GP could also help you get some more help, like referring you to a psychologist.
I think it's normal to be scared and anxious when you get a big diagnosis like this. I'm sure it was a big shock to you. Everyone reacts differently to big diagnoses, some people deal with it quickly, and other people take more time. Right now you're adjusting to the news, and that takes time. I think with time, and maybe talking about your fears with your doctors, you will hopefully feel better. Can you talk to your partner and daughter about any of this? Or any other friends?

[Kittykat13]

Thankyou for the reply.

I have got a mental health plan done and my first appointment with a psychologist is in 2 week. Was a while wait to get in.

I can talk with my partner about some things..however i also dont want to overburden him as it has been hard already on the relationship.

We also has some preexisting issues that hadnt been healed and dealt with ..so it seems a little overwhelming with that too.

Exercise is saving me atm.so yeh.

Im having to dig deep with self compassion and care ...lots to adjust to.

Thanks for listening and replying.

Means alot