So this stage of my life is a new experience for me. Used to take care
of others, never asked for help for myself. Find this difficult to be
open & vulnerable. Everybody's rock. Single mum 3 kids & extras. Primary
carer both parents. Disability worke...
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So this stage of my life is a new experience for me. Used to take care
of others, never asked for help for myself. Find this difficult to be
open & vulnerable. Everybody's rock. Single mum 3 kids & extras. Primary
carer both parents. Disability worker. Attacked at work by client (after
going to help coworker); caused soft tissue injuries, broken bones,
detached retina, spinal nerve damage, massive weight gain... Literally
had to learn to walk again. Now suffer chronic pain, nerve pain, falls
due to balance issues, muscle spasms & tremors, cervicogenic headaches
(migraine on steroids - stimulation eg light, noise, clothes... all
painful), ocular migraines (temp loss of vision), nightmares,
depression, grief & ptsd. ANGRY. There's more but thats enough negative.
I lived to dance, paint, garden, read and cook. I loved & lived life to
the fullest, always busy. Now I can barely walk. Chances of making it
back to the dance floor - not. I chair dance on my rare good days.
Although I can't stand the noise from the music. I'll never cook again.
- blending flavours, creating visual appeal and taste; totally lost
knife skills; painting fairyland or dolphin/undersea murals was my
release from life's stress. gardening is another lost skill - can't do
bonsai safely anymore, nor can I cope with the demands of maintaining a
decent garden. Reading is slowly coming back - I can read short stories
again sometimes. I keep notes of characters & plot line, so I don't I
forget and lose understanding. There is so much of my life I have lost.
Pet peeve - general public's belief that they have the "right" to know
my life story. I'm not some freaking reality TV show for their
entertainment. Yes there is a horrifying story about intrusion beyond
social acceptability behind this issue. I was actually chased into the
toilets by someone who felt that it was their right to know my story. I
have changed from a very social person to complete self-isolation. I
talk to my medical team & 1 friend who wouldn't let me cut them out of
my life, no matter how hard I tried. So do I have a life? NO! I exist.
But I am slowly (4 years now) coming to terms with this new "life". Have
I considered ending it all? Several times, but couldn't do that to my
kids - the life-sentence of grief and guilt they would feel stops me
every time. So now its time to learn how to start living again - maybe
not how I had planned, but that's life. This was my next step on that
pathway.