My partner was born with a heart condition, which in turn deprived his
body of normal levels of oxygen and damaged his lungs. He grew up being
told he was not expected to live to the age of twenty. He surpassed
that, but over the course of our relati...
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My partner was born with a heart condition, which in turn deprived his
body of normal levels of oxygen and damaged his lungs. He grew up being
told he was not expected to live to the age of twenty. He surpassed
that, but over the course of our relationship his health continued to go
downhill. Eventually he quit work, some while later quit study, and
finally moved in with me, having accepted he needed my help with pretty
much everything. Not long after he moved in we got the call - there was
a donor, and he was to have both heart and lungs transplanted. That was
about four months ago. Physically, he is able to do things he hasn't
been able to do for years, but he is by no means mended. Mentally...
he's battled depression for years and had a pretty good handle on it.
But now, the ordeal of surgery and the lengthy stay in an interstate
hospital, the sheer amount of time we had to be away from home and
managing that with the rigors of covid, a bunch of things going wrong at
home after that making it extremely hard to get into any sense of
normalcy... It's taken it's toll on both of us. He is on immune
suppressants, which make him vulnerable to any bug going past, never
mind the big one everyone is on about. He has a fungal infection in his
lungs, from spores we all breathe in at one time or another but don't
know about because our body sends them on their way. His various meds
make him nauseous on and off, and give him the shakes. We don't know if
his constant exhaustion is physical or mental in nature, or both. Then
here's me, also a long term depression sufferer, burnt out long before
becoming a carer in a job I utterly loathe (yes of course I've tried
finding another, please do not ask that!). He can't work, of course, and
I can't provide for us without working - whatever he gets from
Centrelink goes down depending on my income, so the more I work the more
I have to. I somehow have to manage a household, care for our two birds
and keep two depressed people out of that black hole we go down, each of
those things being full time jobs in their own right. I'm half managing
that whilst on leave. Now the money is running out and I am on the verge
of returning to work, I have no idea how I am going to cope with it all
and somehow have room for taking care of myself. I wouldn't want to be
with anyone else and of course I don't begrudge my partner for needing
me as he does. On the flip side, how the heck do I maintain balance with
work thrown back into the mix?