hi everyone,im new on here, but im going to do my best to reach outim a
full-time carer to my husband who has paranoia schizaphrenia , and now 7
years ago he has been diagnosed with FTD frontotemporal dementiahis only
in his mid 50s , ive been on thi...
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hi everyone,im new on here, but im going to do my best to reach outim a
full-time carer to my husband who has paranoia schizaphrenia , and now 7
years ago he has been diagnosed with FTD frontotemporal dementiahis only
in his mid 50s , ive been on this journey for 8 years now and its
becoming extremly tough nowi have no family supports , no close friends
anymore , my husband cant get NDIS as his from NZ but ive managed to get
him my age care his behaviour is now changing again, i have been under
extreme stress, carer burnt out, lack of sleep, i have my own health
issues im dealing through day by day, i suffer from PTSD for 20 years,
ive reached out to carer gateway , respite places, other organizations ,
my local GP, nursing homes , my local MPgiven the fact my husband cant
get NDIS i have limited supports for myself and my husbandim finding my
caring role is becoming a real challenge now, as im now mothering my
husband and im getting very depressed more, it makes me cry inside and
how cruel life can be , im feeling very alone , nobody to talk to
anymore that can understand a caring role that is very demanding and
complex .ive recently been sexually assalted by my husband , ive lost my
best friend due to my husbands behaviours , he has day respite where he
can go 3 days a week, but this is changing also as my husband has now
become fixated on a worker at his respite centre , which now gives me no
break and not knowing what to do.im beyond trying to reach out to
supports , my husband is under mental health also , which ive several
times addressed my concerns and seeking advise, i dont have much faith
in mental health they just want to give my husband more medications to
make him sedated more which i refuse to, as he almost died 3 times from
mental healthi have tried several times to get my husband into a nursing
home for respite for 2 weeks, but nobody will accepted him due to his
under 60 , and a history of self harms, and he tends to run away to
return home to me.if anybody out there has any ideas or advise i love my
husband dearly, he never asked for this to happen to him or our
marriagebut im on this journey with him, for better or worse or sickness
and in health