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Isolated-cold-lonely and depressed.
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As i live in an isolated regional area with all the cold weather with my depression i am finding life very hard at the moment. I am not new to BB but have not posted for some months but find myself needed help as I am sliding into a dark place which i seem to carry with me…
With not that much support available in my area at night i decided to reactivate contact on these forums as it was helpful then so why not now. STS
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Hi Wayne,
I hope the MS meds continue to work for you and your legs feel like your own again! Bodies can be so tricky!
I have seen some great results with MS biological meds. It must be very hard being so isolated and without the ability to drive a car. It's reassuring that good people have come to your aid. Though obviously it means that you are one of the good sorts that people want to be around and help out, that's nice.
Take extra special care of you and remember to not give yourself a hard time about not doing everything you think you should be doing. You'll have little adjsuting to do so do rest up.
Hugs for you and tummy tickles for Lucy.
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Hi Wednesday,
Trying not to give myself a hard time, but its difficult i am so good at doing that..just typing is so hard using my left hand as i'am right handed. Been reading a great deal on the ms Australia web site must admit it's a bit scary.
Thanks again for your kind words i must sign off now and rest up some.
Wayne and Lucy
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Hello Wayne,
You made me laugh, we are all experts at giving ourselves hard time aren't we! So I vote you to be out leader and stop this instant giving yourself hard time and settings all an excellent example (grin).
Gosh yes, MS does sound scary especially right now as you are barely figuring out what it means for you. Your body has let you down in ways you hadn't considered possible before. You may need to grieve a little even get angry, do whatever it takes. But you will come to terms with this new event and because you are you, you'll find a way to manage. Just when you think life is set in stone it has a curious way of changing.
Oh for a magic wand.
I know there are meds that work out there, please make sure you have good specialist and keep in touch with them it will make a difference. Being at the beginning it may take a while to work your way through all the medical administrivia.
You're not alone on this journey there's lots of support here for you and there will be an MS office / site that can offer seem support too. Don't be too proud and take any support offered.
Wish I could drop in something yummy for you to eat.
Hugs.
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Hi there Wayne
I was thinking of you, so I thought I would pop in here, and say hello. I guess you are so used to being so independent or something.
Your typing seems okay considering you are using your other hand. And I am glad you have some friends there helping you out.
Did they give you any specific exercises to do Wayne,? I have known a lady for over 9 years that lives with MS. She is about 80 years old now. I remember her saying once that her body goes into remission, that is she is symptom free for a time, or something like that. She does specific exercises.
Anyway I just wanted to say hello and send out a hug to you.
Bye now
Love Shell xxx
PS....hi Lucy
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Hi Shell and Wednesday,
Thank you both for calling by for a chat, i don't have much to talk about these days come to think about it i don't have a lot to say at the best of times.
I do have a couple close friends in the local area!! but what is extra special to me is the friendship i have with beautiful people like you both and the others i know on the forum, something special to share our stories as dark as they be and have others respond in the way they do..warm, considerate and compassionately and just the fact we haven't met, and another point is one can always post any time of day and someone will be there.
Hi had a bit of a Hehehe when you said about the magic wand Wednesday the only wand i can remember is the one that crossed my bum when i was in trouble as a nipper!!!
I had a sheep or two get into a paddock which i planted out with Oates and was concerned about that and started the old worry thing but when i stepped back thought about it i decided as the crop was not doing real well due to all the rain i may as well let the whole mob in there and let them eat it off…they will be happy and i'am not worrying..how easy is that don't know why i don't think like that more often.
My son Fabian is coming down from the Gold coast for a visit when he finishes the project he is working on which should be in a week or two it will be great to see him as i know he is worrying about me which upsets me terribly as he has his young family and can do without my stuff.
When Lucy went out for a walk this morning i was watching her walk around and a flock of resident chuffs (not sure of spelling) started to dive bomb her, she needed to defend herself so barked and jumped up them it was funny to look at…no one was hurt while making the film so all was good.
Will be starting physio next week so i suppose that will be fun, i am getting around heaps better so it's a good start.
Just being able to chat is so helpful for me not to go into depression i thank you so so much.
Wayne & Lucy
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Hi Wayne,
I loved your paddock of oats solution. I know nothing about farming but it seems like such good solution, way to go Wayne. On a brain level now you have thought that way once you start a new neural pathway, so next time it will be easier. And the more you do it the thicker the neural pathway and the easier it gets... how good is that! Bodies are so clever.
Oh how fabulous seeing Fabian, I bet he is worried about you. As he should your his dad, let him care and worry about you, his family will manage without him for a little while. I hope you are making a list of all those jobs that need to be done while he is around.
It was good to read that you were out walking and getting around, such a positive sign. I'm glad that Lucy got her own back on the dive bombers. My doggy loves to chase birds so he would have been right in there helping! There is an oval close by I take him to. He likes to chase the mud larks who fly just above his nose. I think birds and dog enjoy the chase.
Physio next week, will they be working on your arm? Hope it goes well.
Take careful care of yourself, hugs, x.
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Hi Wayne and Lucy,
A quick hello to you both. The weather report is talking about warmer days and less rain, nice walking weather for owners and doggies!
I hope you are both okay, sleeping and eating well. Take great care of you!
Hugs.
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Hi Wednesday,
Doing it a bit tough today! Feeling so confined and rather isolated i am desperately trying not to fall into a depressive state…thanks for calling in and things will be better tomorrow??
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Hi Wayne,
Hang in there. It's no wonder your feeling bit down you have had a lot to contend with of late. These new experiences have away of throwing us from one emotion to another. How are you going coming to terms with your diagnosis? It must have your head running around in circles trying to make sense of it all.
You're are right though, this is just a moment in time and you will adjust. Don't be too hard on yourself, every baby step counts. At this stage getting through each day and eating is to be celebrated. I hope your lovely friends are still dropping by. Maybe this is a good day to say whatever and watch something funny is Shaun the Sheep around?
Is Fabian arriving soon?
I wish I could drop by with something yummy for you to eat. Though I have an atrocious sense of direction and fear that given you're not in the city I'd end up taking a detour via the WA and the Northern Territory or some such thing!
Hugs to you and Lucy.