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Sick and tired of being sick
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Hello. I'm battling multiple auto immune diseases along with chronic pain. I'm sick and tired of being sick and tired; physically, mentally, emotionally and financially etc. I've got no partner, kids or family around. And very few real friends that actually bother to check in on me. My shrink retired earlier in the year. I'm on medication but lately my health has once again deteriorated. Including over $2500 worth of urgent dental work with more needed afterwards.
I can't take much more of this. I spoke with a close friend the other day; who I haven't seen for 8 months and although he was kind enough to let me pour my heart out. He couldn't help me. And has other priorities. I feel as though everyone thinks I'm ok.. because I've been through so much that I'll get through this.
I just want it to end. I'm tired of struggling. Every. Single. Day.
I don't want to live like this anymore.
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Hello Bbydoll....
I agree with Magic...Meds do make us less motivated..I was out nearly all day yesterday until 7pm...It took me so much to walk out my door to my mental health support worker...but I did it..and although tiring I was okay...
Getting out a little does help..Do you have a sunny spot that you can sit in outside or even inside..our bodies need sun to survive, and it’s also therapeutic...
Please don’t be hard on yourself with the fairy floss..it’s so hard not to eat it all...Hun I’m wondering if next time you shop to write a list out and try hard not to put to many sweet foods on it....Just a thought lovely lady...One thing that I buy a lot of is 2 minute noodles and a few pmts of frozen vegetables, when my pay goes to bills...I just zap some veggies in the microwave and add it to the noodle soup once I’ve prepared it..it’s very filling and healthy...
Please don’t ever think you deserve this..because you don’t...Something I started to do was to get off the lounge and do something for 5 minutes...I felt good because I done something...I done that each 2 hours, after a few days of doing this, I was doing things for much longer then 5 minutes without even realising it...Is this something that you might try Bbydoll...
Im sorry about your teeth...on Centrelink they will help pay for them once a year...All you need to donis contact them...
I hope your okay Bbydoll...I want you to find some happiness in your life...because we all deserve some..
Please enjoy today lovely Bbydoll....I’m sitting with you very quietly..if you feel like talking I’m listening..here for you when I am able to be..Please look after you..
Kind thoughts with my care..
Grandy.l
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Hi Monkey_magic and Grandy,
As far as my teeth go. I was supposed to see the dental clinic at the local hospital but they're not opened because they don't have the correct protective gear. I actually ended up in hospital 2 months ago because I developed an abscess under one of my back molars. After IV antibiotics, they removed the tooth on the ward!! With a few shots of local anesthetic to try and numb it. I ended up spending a week in hospital because of it. And on some pretty heavy antibiotics because of it. I was told that they'd put me on a specific wait list because of all the medications I'm on. I still haven't heard back from them. One of my nurses had told me that the dentists had removed other people's teeth on the ward as well, because they were in similar situations. I have mentioned my dental issues with my GP, he's convinced it's because of my pain medications - but I've reduced them quite significantly. So I don't agree. My mouth has gotten worse with my illnesses and I find that I'm breathing with my mouth open; which won't help the situation. There's not an easy situation unfortunately. My uncle said he'd help pay to the value of $1300. But I haven't followed through yet.
It looks like rain for this weekend -- so I'm not sure if my plans with my friend will go ahead. I've yet to ask her. My health is playing up, so if she cancels - it won't be a big problem. I've also had my pain flare as Australia post hasn't been delivering parcels that I'd ordered. So I've had to walk down and carry the parcels back home. They're not heavy, just difficult to carry home.
I have to see my GP in the next couple of weeks to get pain meds and I've been told that I need to see the pain clinic again as they tried to decrease my pain meds further but I had a reaction to the replacement medication. I'm barely able to move on a day to day basis because of the pain. But because of the government's red tape - I have to go through all this hassle. It sucks because I rely on it as I have no help and have errands and grocery shopping etc to do on my own, by public transport 😣
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Hello Bbydoll,
I really hope that you get in soon for your teeth with you being on the special wait list....My teeth also need attention very badly, I’m trying to wait until I’m on aged pension...as more benefits I think...only 18 months away..If I start feeling the pain of an abscess or gum boil, I’ll immediately start rinsing my mouth with warm salt water..generally within 2 days and before it’s developed to for...it disappears...
I am also expecting rain this week end..maybe instead of going out have a girls night in with some popcorn, a chick flick etc....Could be more easier for you with you struggling with pain..
I’m sorry you have to walk to get your parcels..that’s not right, by Aust post...Where I live it’s mail only twice a week, and parcels have to be picked up from the post office because I am rural, 25 kilometres out of town and they won’t deliver that far out...Geez I can’t even order a pizza because they won’t deliver out here...So not fair..
Its good your seeing your GG in a couple of weeks, as well as your pain clinic...I hope both of them can help you..
Maybe speak to your GP about getting some help for you at home, your shopping and with your parcels...There are organisations out their that do this kind of things for people on dsp...Your GP would know of them...
I hope today was better then yesterday..
Talk here anytime I’m listening and will pop in to chat with you when I can..
Sending you Kind thoughts and my care..
Grandy..
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Hi Grandy,
I've tried getting help with doing grocery shopping and running errands. But I'm always told I'm too young by the service providers. I'm in my 40s. I've even tried after having major surgery and the service providers reluctantly do it for a couple of weeks and that's it. I'm trying to get on NDIS for some extra assistance but they're hard to get as well. I was sick all through my teenage years and it took me until I was in my 20s to get onto DSP. And then I ended up getting sicker anyway. I'm going to cancel my get together because I can't afford to do it. I've bought a calming blanket on special and have no money for anything else. I've got enough food for me for this fortnight... leftovers and frozen stuff. But nothing really worth sharing. I don't really want to do anything at the moment anyways. I managed to sleep from over 12 hours straight. And woke up at 5am... thinking it was only 5pm! Crazy.
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Big. Surprise. No one is reading what I'm posting. Sounds just like my life! I was shifted to a mental health team; after my shrink retired. Initially they were great! I had them try to get me onto NDIS... even though I doubt it will happen. Several other people told me that they'd help get me on there. And nothing ever happened of course.
I've been isolating myself because of my depression - so haven't been in contact with these people much. AND the moment that I reach out and ask for help... as I'm struggling. I'm told that the supervisor of my case manager wants to sit down with me and talk.. and she's going on holidays for 2 weeks. (School holidays obviously).... great so what the F do I do now!!!!
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We’re so grateful to have you reach out to our community this morning and are so sorry to hear everything you have going on at the moment. Times like this can definitely get overwhelming . We hope that you find our forums to be a safe and supportive space to talk through your thoughts and feelings. Our community is here for you.
We hope you know that there is always help available to you, whether it's from our professional mental health counsellors Beyond Blue (available 24/7/365 on 1300 22 4636) or our friends at Lifeline (13 11 14) or the Suicide Call Back Service (1300 659 467).
Keep checking back in with us whenever you feel up to it.
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I'm listening and I hope that you are doing ok.
I'm glad the mental health team are providing you with some support. It can be invaluable to have others around us when we are not feeling crash hot. 2 weeks will hopefully fly by.
You can keep writing in to us. Sorry your thread has been quiet, it happens sometimes.
What's been happening since last time you posted?
I have been successful in winning my tribunal hearing against the mental health team so I am no longer force injected with medication. A problem I had for a long time I found too hard to live with. It's over for now. I'm glad.
Maybe you can tell us what you do throughout the day/ night to persevere through. I'm sure we can learn from you.
💐
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Thanks for your respone monkey_magic. It sounds like a great win you've had. So congrats. I sleep a lot. For 2 reasons - my depression and my health issues. When I sleep; I am not battling my mind or body. I usually watch a bit of tv; or listen to some music at night. I am trying not to over eat; as I've already gained way too much weight and the extra weight only adds to my health issues. I find if I am struggling to switch off I put my ear phones on and listen to a laid back type of music and drift off that. It helps when things get really bad. I tried reaching out to my closest friend for a catch up but he's not responding probably because of the school holidays - he has a young son; and often has to look after him on top of full time work.
I did some errands today and I'm now sore and tired and really over feeling so lousy - I'm really finding it difficult to get things done because I'm overweight and unfit and dealing with chronic pain and chronic health issues. On top of my mental health issues. I'm tired of doing this on my own. Everything is still an effort - physically and emotionally.
Thank you Sophie for your response as well. I'm going to screen shot the information you provided and write it out later.
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