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Centaureds story. TW
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I feel like writing down some of my story might help me ease some of the pain in my head right now. Ive been on beyond blue for a while now and had a few different threads but haven't shared much of my story, or the reasons why I have developed DID.
Be mindful this post mentions different types of abuse.
On the outside my childhood looked normal. I had a mum, a dad, a brother, and some extended family. And although we weren't well off, my parents still owned their home and we had food on the table.But behind closed things were falling apart.
It starts at just 5. My dad was diagnosed with a serious brain tumour. It mainly effected his emotions and his body's ability to regulate itself. He was very sick, spent over 6 months in treatment. The drs got rid of his tumour but he was never the same, with serious brain damage and vision impaired.
My mum became physically abusive not being able manage, or lock us up for days. I don't know what was worse.
At 5 I also had a big operation in my abdomen and with things going on at home began my struggle with eating and thus I later developed an eating disorder but that is only a side note.
In the years following I had issues with my grandfather, he was always touchy but I vague memories of this slowly getting worse.
Then at 8-9 I was the product of incest. My brother would touch me, but in the later period this left to much more and rape.
The next year my family moved states and I got away from grandfather and my brothers abuse stopped.
I would withdraw into fantasy and began to dissociate a lot.
Then High School came around and was difficult with very few friends and bullying and avoidance.
My mum had an affair when I was 13 and then left my dad. Forcing me and my brother to live week with her week with dad. It was very destabilizing.
Later on in school I became increasingly withdrawn, and began to self harm. My weight at this point was getting very low. By the end of high school my weight was critical and I made my first attempt.
Ive spent the next 11 years in and out of hospital, institutions, in various therapies, seen so many different professionals, struggling to come to the conclusion that I am not not what has happened to me
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Hi Centaured,
Sorry to hear you've had a rough few weeks. I hope you are feeling more supported now. I hope your improvement continues. As summer rose mentioned, please take some time to rest and take care of yourself. We are honoured to be beside you for the journey. Keep us updated. 💙
Bob
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Bob and Summer Rose. The last few days have been really emotional. I feel so lost and trapped here. I'm trying so hard to find the small wins and positives but the cracks are showing today.
I should be downgraded from ICU today today to a medical ward I'm just waiting for the bed to become allocated and available. It's been a long 10 days in here. Being in a coma was scary and I have so many medical complications following the resus. It's really scary.
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Hi Centaured
I want to share something with you, not because I want you to worry about me or offer me any support (please don’t). Despite my circumstances, I am actually in a good place. I’m only sharing because I want you to know that I really understand your fear about physical challenges and I want to help you.
I live with an incurable, rare and disabling physical disease. I never know what symptoms or developments the day will bring. I was diagnosed a few months ago.
To face the day I meditate and remind myself that I got through yesterday, which means there is proof that I can do the day ahead. I remind myself that I am stronger than I think. Mindset is the key.
I deal with the medical challenges ahead of me that day. I don’t even think about what might happen because there is no point—they also might not happen. Cross the bridges you must, when you must. Save your energy for what you must deal with in real time.
I let the doctors worry about the medical side of things—that’s their job. My job is to listen to them, listen to my body and keep myself well informed and motivated to help myself. I am trying all options that could help me with an open mind.
Yesterday I had a medical procedure that terrified me and I didn’t want to do it. But it could bring me six months of some symptoms relief. So, I closed my eyes and jumped into the unknown because I honestly believed the “universe” would catch me. For me, faith is essential to healing. And it all went well and today I actually feel good.
You are in the best place you can be right now—surrounded by people who can help you. They will do their best.
You can do this. Your courage and strength are evident. Never forget that you are a survivor.
Of course, cracks will appear—you are human. When my cracks appear and I’m mentally and physically exhausted and I want to give up or I’m paralysed by fear, I reframe my situation. I tell myself this is a wonderful opportunity to work on my health. Because rest is part of healing. I escape with some Netflix, read or come to the forums (because helping other people is good for them and me—it makes me feel better too).
I hope this all makes sense to you.
Kind thoughts to you
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Hi Centaured,
Thank you for keeping us updated. I can't believe what you're going through. I've never known anyone to be in a coma or resuscitated so can't imagine what that's like. I hope they actually take time to work with you on the ward this time around and make sure you're supported before even thinking about discharge.
Of course it must be very scary and I'm sure this will be the case no matter what. But it is great you find the strength to keep fighting, to come to the forums and to also try and find the small wins/positives each day. Im not sure what much more I can offer other than my unconditional love and support. Please keep us updated as we do often think and care about you. You can do this. 💙
Bob
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Hey Centaured
You’ve been on my mind a lot lately. Sending love and best wishes for your recovery💜
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Thanks summer rose.
I don't really know what to say. I have been in the psych ward a few days now. Things are still really hard and complicated, I kinda just want to go home. There has to be a lotore set in place before I'm discharged though. But I'm hoping to get home sometime this week.
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Hi Centaured
Thanks for sharing what you can.
Sometimes it’s just about getting through as best you can. I get that.
Remember. You are safe. You are well cared for. You have people wishing you well. And you have a goal to get home.
Kind thoughts to you
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After 3 weeks in hospital I was discharged yesterday. Was good to get home.
The support worker overnight has been lovely. I'm letting them sleep at the moment.
The hospital messed up my medication so I ahvemt slept much tonight but been chatting to some international friends and managed a little rest.
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Hey Centaured
Wonderful news to hear that you’re home! Sorry about the sleep issues though. Hopefully you can get that sorted fairly quickly.
I’m glad that you have a support worker with you. I really encourage you to make every effort to stick to your post hospital safety plan. Look after yourself well and enjoy yourself too.
I’m very happy for you and grateful to you for letting us know. You’ve made my day!
Kind thoughts to you
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Hi Centaured,
Great to hear from you and thanks for the update! Good to hear that you've had a lovely support worker and I hope they are with you long term. I hope the medication changes go okay in the coming weeks. 🙂
Bob