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struggling with special needs children

Matchy69
Blue Voices Member
Blue Voices Member
Does anyone else have children with special needs.I am struggling with mine.My youngest cant use a toilet when their at the age they should be.I am getting tired of changing them,does that make me a bad parent?The constant hyperepisodes are taking their strain especially that i am going through other personal stuff in my life
1,006 Replies 1,006

Matchy69
Blue Voices Member
Blue Voices Member

Thanks Boudica it seems that the medication is doing what it is suppose to do.I will see how he goes over the weekend.

Take care,

Mark.

Boudica
Community Member

Hello Mark,

How are you feeling today, hope you are okay. I am trying to get me son out for a bike ride (it's hard to get him out the house at all sometimes).

j

Matchy69
Blue Voices Member
Blue Voices Member

Hi Boudica my son's doing ok and full of energy and really has picked up.I just have to keep a close eye on him over the weekend.My daughter got an A for her maths assignment which is great she usually gets As.I think I will be worn out this weekend.I don't even know if I will get a chance to watch the footy on ANZAC Day.

Take care,

Mark.

Boudica
Community Member

Hi Mark,

Good to hear your son is doing okay, I'm happy for you. Sounds like your daughter is a smart cookie 🙂 Take care of yourself, you've had a rough week.

Sorry don't care about football (It seems I am alone in the world on this though).

Matchy69
Blue Voices Member
Blue Voices Member

Hi Boudica my son managed to sleep through the night which was good as I thought I would have to get up a few times for him.I have been up myself since 3 am.I would have loved a bit more sleep but couldnt get back to sleep and my son will be up soon.

Take care,

Mark.

Boudica
Community Member

Good Morning Mark,

It's great your son could sleep through, he really needs his sleep now, sleep is healing.

3am is early to get up. I often have that problem, where I wake and can't get back to sleep. I have too many worries crowding in and can't shut my brain down, does this happen to you? It is hard to relax when you are on alert listening for restless children too. I recently got a fitbit which graphs my sleep, hence I have realised how poorly I sleep, so I have been trying to improve, as lack of sleep really impacts energy levels and mood. I find I am fine with a night or two of sleep deprivation, but when I have short sleep for a week or so, I think I go a bit loopy and my thought get dark.

Today my son is spending the day at his dads, so I must get stuck in to study......I don't feel very motivated as it would be beautiful weather for a hike and I feel restless, but I feel like I am behind with my work 😞

I hope you cope ok today despite your sleep deprivation. Be kind to yourself

Matchy69
Blue Voices Member
Blue Voices Member

Hi Boudica today my son has just finished is last dose of his medication at a high dose twice a day and will now have one low dose at night.So I will see if their is any change with that.Very exhausted today just feel totally worn out.I did manage to listen to the town ANZAC service from my place this morning.

I hope you manage to get some study in today though it was a beautiful day here after a foggy morning.

Take care,

Mark.

Boudica
Community Member

Hello Mark,

How are you feeling today? Hope things are going well for you and your son and the change in meds goes to plan.

I haven't been to an Anzac dawn service since I was a kid, all the old folks in my family have gone now. I had family that had been through the wars but did not like to talk of it and I think it's only later in life you realise just how large those experiences must have loomed in their life. I have never really been particularly into war history, but I visited Gallipoli years ago when I was in Turkey, and it was a really sombre emotional place.

I've really been finding it hard to study at the moment, I sit but can't concentrate. I have finished my degree now, but doing honours, beginning to wonder if I have made a mistake committing to it, as it is quite hard to juggle with a special needs child too.

Have a nice day, I hope it is peaceful.

Matchy69
Blue Voices Member
Blue Voices Member

Hi Boudica I can understand how hard would be to study especially with a special needs child.I don't think I could do it and admire you for doing it.Good luck with your Honours and hope you get there.

That would have been an experience visiting Gallipolie.My grandfather visited there in 1915.Certainly caused him a lot of mental health problems and was one who would never March or talk about the war.

I am just physically and mentally warned out today and feeling very depressed today.I hope he can be back at school next week.See how he goes this week.

Take care,

Mark.

Boudica
Community Member
Mark, I am sorry to hear you are feeling down. It is not surprising that going through a crisis with your son's health has left you feeling depleted. You are probably super focused on your son right now, but try to take some time to relax and clear your mind, I know it's hard, but you've got to take care of yourself too. Try to smile! I read today that smiling releases endorphins that make you feel better even when it is a fake smile!