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Staying/Getting/Doing Well – Moving goalposts or fixed target?
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Hi, this is my first post, though I have been reading the forums for some weeks. I’m probably expressing myself badly when I say that I have found reading about other people’s journeys reassuring. Finding a community of people who “get it” even when they have a wide variety of experiences and lives lived is not something I thought I would ever find.
Though people talk about getting well & there is a section Staying Well, I’m curious as to what this actually means to other people and how they manage their expectations. I noticed some people refer to being well as ‘being like themselves before they got ill’, whilst others don’t express an exact aim.
My idea of being well has changed over the years. I was first diagnosed as an 8 year old child back in the late sixties. The doctors told Mum that the voices in my head & the sudden crying bouts were because I suffered from ‘nerves’ & I was given meds to calm me. Of course such things were not discussed back then & I was told not to talk about it to anyone, not my school friends nor siblings, just Mum. For decades after my idea of being well simply meant being able to hide my illness from others.
A number of events in
my life caused my illness to worsen, until some years ago I became so ill I
needed to be hospitalised for my own safety. This lead to my current diagnosis
of Major Depression, Anxiety & PTSD. I’m no longer in that dark place, but each
day is still a battle (though I can now believe in a future). For now only my
siblings & one friend know about my illness, though some things they still
don’t know.
So, what does ‘being well’ mean to me, it is ever moving
goalposts. If you had asked me 5 years
ago would I be as well as I am now I would have thought it impossible as I
couldn’t envision a future. If you had asked me last week (during one of my
down periods) I would have said my progress was all an illusion & I was
fooling myself that things can get better.
For now my idea of being well is being able to believe that
things can change for the better, that I will one day be able to manage the
everyday things like housework, caring for myself & caring for my dog &
maybe, just maybe I will even be able to enjoy myself.
Paw Prints
**I took the tip to give myself time to write my
post by writing on a word doc & then paste it.
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Hi paws
Are you OK down there, I hope you didn't hurt yourself getting Woofa out of the car. That must have been exhausting.
Gosh it's still cold here! The wind is the worst, it's icy and won't stop blowing. The windows on my old house rattle.
What's happening with your relative in the city who is sick? You haven't said any more about her.
Not sure what I'm up to today with this wild weather. Got petrol yesterday and it was $1.50 per litre, ouch!
Sending you warmest hugs 💖🐦🌳🐕🌻
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Hello Everyone,
I have been managing to do a few things... I've been in bed before 11pm for the past 4 nights... still need to convince my body that night time is for sleeping... poor Woofa I keep waking him with my tossing & turning...
I have finally put everything back in the buffet I moved... I have given the repaired planters a second coat of paint... I have watered the pots that missed out on the rain... I have been into big town to the Dr to get scripts & a letter I needed... I went to the chemist & I have made an appointment for Woofa at the vet...
I had wanted to go to Bunnings & the supermarket in big town, but I didn't feel able after the doctors... so back on the to do list they go...
My elderly relative is back in hospital & not doing well... I'm trying to remain positive that she will come home & I will be able to visit her... but my tears belie my hoping...
Hugs to you all
Paws
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Hi Paws
We'll done you, you're powering along there! All that sounds brilliant! Do you feel good about it, you should be pleased with yourself!
What is happening with your relative in the city? Is there any way you could visit her? How sick is she? I'm sorry you have this worry.
I hope the family keeps you informed. Big hugs from us here, and I'm so glad you have got so much done. Can you reward yourself with some kind of treat?
You've doing great!
Hugs 🐕🐦🙂🦢💗🐥🌳
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Hi Paws and everyone reading..
I am so sorry to hear about your elderly being sick and in hospital...I wish them the best wishes I can for them to recover....
Wow Paws you have done so much today..very well done lovely lady...I have also started to go to bed early each night and have set my alarm to 7am.....haha Sometimes I switch it off....but I do find going to bed at a regular time does help my body feel better and not so sluggish...
Thats okay that Bunnings and the supermarket are back on your to do list....gee look at all the things you done today....
Paws...There is always hope where their is breathe...I am very sorry that you are crying yet I think it’s okay to cry..to let out all your emotions...🤗 Hugs lovely Paws..
My kindest thoughts for you and your elderly relative..with hugs, love and care...
Grandy..l.
ps..Please talk here when your up to it...,
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Hello Hanna, Grandy, wave to everyone,
My elderly relative is the one I mentioned a few weeks ago... the Drs have refused to treat her cancer because of her age... she is in hospital now because she was in so much pain her son rang an ambulance... they are sorting pain relief & then they will send her back home... she now sleeps most of the day & can't cope with more than one visitor at a time... nor can she cope with visitors every day... even family... her son (carer) says she is obviously deteriorating... of course her other sons visiting her is ahead of anyone else visiting... I will need to work out a time that suits her with her son (carer) I'm hoping it will be soon.
I had a nana nap today... so nothing really done except going to get milk... Woofa didn't come with me as I didn't want the stress of him refusing to get out of the car... Vet visit tomorrow morning for his arthritis shot & a few other things... there won't be a problem getting him out of the car at the vet as he loves going there & is always so excited to go in.
Grandy I can't turn my alarm clock off, it has four legs & won't allow me to be any later than 6:30am to give him his breakfast... however I have learnt to feed him without waking up properly so I can get at least a couple more hours.
I've sent a text to the chap I usually get to mow my paddock etc & I'm waiting to hear back from him... now it is dry enough for his bigger machine so I will get him to mow everything & he can show me how to use my charger so I can then keep it down.
Really warm here today... hot winds...
Hugs
Paws
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Hi Paws
I'm sorry I'm only here briefly as I'm very late home tonight... I think any treatment for your relative would probably cause her a great deal of nausea and discomfort/suffering and they have decided its better just to keep her comfortable. If she is elderly any treatment is not likely to be beneficial and just cause her suffering.
I'm so sorry and I hope you can organise to see her soon. That would be a great comfort to both of you I'm sure.
Take care of yourself too dear lady. Gentle hugs 💕🦢🌷🐦🌻🌸🌹🍃🌿
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Hello Hanna, wave to everyone,
Well Woofa made a liar of me... despite the vet being his favourite place to visit... he refused to get out of the car & so we had to have an in car consult... so he is now back on anti-inflammatories as well as his arthritis needle & supplements... once we get his pain levels back under control we will have to get bloods done. Thankfully it only took about 15 minutes to get him out of the car once we got home.
Now I have to get motivated to get off the couch & do something useful... I think I might start off with planting out the pots I painted.
Hugs to everyone
Paws
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Poor old Woofa! He must have been in pain. Rainy weather won't be helpful either.
Hope you got the plant potted!
🙂🎶🌿🐦
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Hi paws
Are you OK? I'm taking a bit of a breather from posting on my thread but wondering if you have been able to visit your sick relative in the city? What's been happening?
It would be good to hear from you and let us know if you are all right.
Big hugs 💌🌹🌻🎶🐕💞
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Hello Hanna, Grandy, wave to everyone,
I haven't organised a time to visit my relative yet... when I last spoke to her son we sort of settled with sometime in Dec with the actual date to be confirmed closer to... I remember when I was providing pallative care to Dad how tiring having to manage all the calls & visits was... especially when numbers had to be limited... so I'm not ringing to get updates despite wanting too.
Yesterday's useful things were - I potted up the repaired pots... did the dishes... cleared the clutter from the kitchen benches... bought fish & chips (not as nice as last time)... had my mowing chap's dad come & get an idea of how much work will be needed to get my grass down... they will ring me later this week to set dates... I'm not waiting for my neighbour as like all the farmers here he is frantically mowing & baling his hay while we have a warm spell... & I went to bed before 11pm.
I tried connecting Medicare to My Gov yesterday so I could download a copy of my vax certificate... would it work???... of course not!!!... it now says I tried too many times & I must either ring or go in person to one of their offices.... grrr
I still haven't done anything useful today... but I'm telling myself the day isn't done yet... however getting the oomph to get off the couch is needed... especially after sleeping too long this morning... plus I have a Great Dane sitting on my lap doing his neighbourhood watching out through the window.
The anti-inflammatories are already making a difference for Woofa... yay!!
Its very warm & muggy here today... I've got the fan on just too keep the air moving.
I hope you are all well... big hugs
Paws