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being off medications.

angeplussix
Community Member
Sleep at the moment is my best friend. Its been 3 weeks since any meds accept a few days were I was put on a very low dose of a anti psychotic med. My head feels so werid . I can't explain the feeling sensation I have its truly bazaar. 

Its a combination not one more than the other just all messed up together....ears popping from altitude/ water in your ears / feeling tipsy/ feeling stoned /yawning.. my head keeps coming in and out of focus but so quickly that I don't loose focus. But feeling dizzy most of the time and nausea to the point of being sick . And having very little appetite 

I have tried to explain this to the mental health team looking after me at the moment but the just don't get it. Does any one out there have a similar strange feeling unable to explain. 
3 Replies 3

Chris_B
Blue Voices Member
Blue Voices Member

Hi angelplussix, I'm surprised the mental health team don't get it - these kinds of symptoms can happen when you come off meds too quickly (and 'too quickly' can be different for everyone as our bodies all react in different ways to meds).  There's even a name for it, 'discontinuation syndrome'.

I have had some of these symptoms when coming off certain antidepressants, and it is horribly unpleasant.  (Brain zaps, anyone?)

See if you can speak to a doctor and explain the symptoms, it may be that you have to go onto a low dose of something for a short while to ease things. The mental health team may not have flagged this as an option because they don't realise the severity of what you're experiencing - make that clear to them.  It sounds like it's badly affecting your ability to enjoy the day, which is more than just a manageable side effect.

best
CB

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ariel
Blue Voices Member
Blue Voices Member

HI angeplussix,

christopher banks is right with regard to discontinuation syndrome, when coming off or stopping meds. I am about 7 weeks into a massive reduction in my meds, all my own doing. i was on a mood stabiliser, 2 different anti-psychotics, an antidepressant, and now im just taking a reduced dose of one of the anti-pyschotics medications. i felt a bit unwell physically when stopping the anti d, but this anti-psychotic is proving very difficult to stop.

i just want a break from my meds. history for me says i will and do crash and burn anyway, and like has finally been acknknowledged, it doesnt happen in a minute. there are prior signs, which sometimes i am aware of, others not so much.

the headaches nausea and vomiting from stepping down the anti-psychotic medication were really bad. but my mental health case worker told me it wasnt possible because it wasn't a drug of addiction!! i laughed at him, cos i know damned well that the effects are real.

they are currenly trying to get me on a different mood stabiliser again, but i dont want it. that has not been the answer in the past, and im not willing to go there again. esp given my predisposition to bad medication practices.

what i would want, is just a level field. not too high, nowhere near the dark. its something i have been struggling with my whol;e life, but esp the past 5 years. ive had every drug available, ive had three courses of ect, all against my will, and the benefits all too short lived. i dont know what the answer is. i dont believe its all in the meds, and i think before too long i may end up back on some of the meds i have quit. im falling, gradually. the days are long. the nights are even longer. my thoughts are a million miles an hour, im forgetting things, important things, and im becoming socially phobic. all part of the illness i know, but it doent make me any lmore accepting of it. and maybe thats half the problem. when im dosed up, and on top of thwe world, i feel like nothing bad will ever happen. im living forever, going to study even more than i already am, excel at work, and just let what be be. thats when i quit my meds. cos i dont need them. im flying. yes, i know, maybe there is a connection between quitting and becoming bipolar depressed, but i argue that one with myself many many times a day. id like to think that in time to come, maybe something will keep me level, or at least less likely to fly or dive to the highest or darkest places.

i wish you well and definitely would see if you could have some sort of meds just to get you through this.

regards,

ariel x

oneblackdog
Community Member

YES!

I describe it as "being drunk, but without any pleasure"

but don't expect much understanding from the mental health experts... after taking 6 months to come off an antidepressant, when the dr advised only a few weeks, i had many and varied wild withdrawal symptoms, none of which the dr would acknowledge as real.

reducing meds can take much, much longer than most experts say (i've since learnt that a safer way is to reduce by 10% every 3 - 4 weeks, with some people taking years) and even then it can take years to recover - these drugs are very, very powerful and long term use is poorly understood (my current dr tells me that the testing for approval is usually only 6 - 8 weeks and then only some of the studies are submitted)


sorry, no trite farewell platitudes from me


OBD