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Trapped in supported accommodation
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I have various people on my team supposedly helping through my depression, and other issues I have. They requested I go into a care facility for a one month stay. Which I agreed to fully expecting to return home about one month after. As soon as I mover in to the place there attitudes changed. All of a sudden I had to stay in the supported accommodation. Because I was not going to be supported in my home. Even though the support I need is available from various agencies. Around Melbourne by various counsels or privet agencies. Providing attendant care and home help. I believe I should be eligible for funding for disability. I have raised this with the people who are my advisers. But get caned every time I am not consulted. About the decision I am told just sit back do as we say. When your ready we will help more then. The plan i am not consulted on it's not working it's just stagnating. My family are no help. I am that fed up where I am. I am rely contemplating ending it all my life has no meaning in here. Just a worthless piece of meat that gets treated like a 3 year old. I know a warehouse full of stuff. That no one can now use. I cannot help anyone in here not even myself I'm not aloud.
Kanga
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Harar Capn Paul I be callin the NDIS this mornin I be askin where scooter be. Cause I be told the demand be put in.
They be sayin we received no demand.
I be callin the OT tellin her they havent got it.
she be callin SWEP who she sent it to (Who partially fund wheelchairs and scooters) who had an issue with part of the quote invoice. and sent it back to the sales pirate.
So yet again My family finds another stuffup in someones business another glitch. Fix it not to be paid a cent. Plus get penalized for being too good for my own good. Buggar Rarr Rarr
Kanga
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Captn Paul the OT pushed the sales person, who got the job done.
Passing it to SWEP who partially pay for the scooter who did a rush job putting it virtually straight through.
Giving it to the NDIS, who now have to pass it. Bureaucratic mumbo jumbo Moving pieces of paper to keep their government jobs. It could be still weeks away before I see the light of day. I have been trapped in three different buildings for four (4) years now. I know one of the places I used to go for support has closed. Because all I have had has been the internet I have found a hand full more to replace that one lost but I have to travel for an hour more to get there. With public transport the way it is Victoria was promised back in 2000- 2002. We would have a fully accessible transport network by 2020. With the tram network alone they are about six years behind. Queensland has a better light rail network than us. they have had theirs far less time than we have had ours. The government sighed off on a deal that said they would fix the TRam network by 2020 it will not make it
Kanga
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When I was told I was getting a scooter I ordered two different pairs of sun glasses to wear. One arrived within a few days the ones with a dark lens. Fine for day time driving keeping the wind and rain out of the eyes. But unable to see at night, buggar.
The second pair I found out was out of stock they offered another dark pair. Which I said no too. I waited for the ones I ordered with a light yellow tint, for night travel. Again to keep the wind and rain out of my eyes whilst driving the scooter. Plus If I am in an accident both pairs have a camera attached which shows everything I see in front of me plus sound. It shows where I am and gives a good representation on who's fault tan accident is. The only thing is you have to remember to turn it on and charge it, as well.
It should be fun going into a few pubs I know. But we wont go there will we.
Kanga
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Every time I make headway one step forward I get kicked back two. The bloke who was to Put the quote in to the NDIS stuffed up his part of the quote which set us back a week. I had a Walk through with Management of the care agency. Who now disagrees with the OT assessment on access to the house. Plus now wants a Spring clean on the house. Ok I will allow that but the Mental health worker is telling me I cannot go to the house till that is done.
But it cannot be done unless I am at the house. I am here in a place where I am being treated by one carer as if I am a three year old. Well it was how I treated my two when they were three. Teaching them thier names and where they lived. Then they have to check where I am going and who I am seeing. Just in case the people I am seeing are going to be leading me up the garden path. Or robing me or taking advantage of me. Yet recently people have tried to rip me off on line. i could see that coming almost as soon as they started their conversation with me. Telling me I had won Mystery Rafael and they wanted my banking details drivers license date of birth. I gave then nothing but shi............ You get the drift
Yet Management here have to protect me as do the staff as do my mental health workers as do my family who I never see or hear from.
Where Do I give up
Kanga
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After a day of playing Sherlock I rang one of the government agencies dealing with me getting the mobility scooter, to find out what is happening. Mob one are saying that they gave it to mob 2 who passed it and then gave it to mob 3 mob 3 told me they hadn't got it. So today I rang mob 2 to find out what's going on. After a full computer search they found me then the problem reared it's ugly little head. They have one address the mob they sent it to mob 3 have a different address. All these are government agencies all designed to make my life easy Yet Both of my children together did not give me this much grief along with their mother and attendant care team woes.
At last thanks to my pushing the right buttons I am getting places.
Kanga
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It has been a while since I have talked with you Kanga. It sounds like you are going through heaps of challenging stuff. But it’s so good you are getting a scooter ( because I remember you talking about wanting and needing one a while back)
And eventually going home ( and you wanted that too)
Even the cool glasses that you are getting sound fun to me.
So once you get on home, can you zip around say on pathways around your place. I have seen people doing that around here. And what speed can you get up too anyway?
Even having a nice clean house sounds calming and refreshing.
Truly it all sounds like a new adventure to me.
Shelley belly
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Shellyyyyyyyyyyyy G'day weeeeeeeeeeeeeeeeeeee long time no chat.
All types of dramas dealing with government agencies filling out reports sending them in. Some people who have filled in these forms for others knowing what has to be written stuffing it up having to redo it all again. Putting me back A week. Government agencies loosing quotes putting me back two weeks. Managers of care agencies saying one thing then changing their minds putting me back anything up to three months getting tradies in to do unnecessary work more paper work. They are saving us money by generating more paper work for them. Save a Tree stop the paper work Even if it is a Virtual piece of paper save a virtual tree they are dieing out you know.
Kanga
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Like sucking
pea soup through a straw (being nice here) so is the stuff in my life. The agency
providing the attendant carers/ cleaners want a spring clean done on the house
before they send in their people. Right they want it I will allow that just to
get what I want. Problem the people who do the spring clean type work on people’s
homes like to have an adult present just in case of breakage or theft. To say
the cleaners didn’t do it. The support coordinator won’t allow me in the
building unsupported, the agency won’t
send in carers into the home, in the state it’s in. Funny thing is it is not
really that bad just a little dust and some rubbish in the kitchen tidy. All it
needs is a dusting a vacuum and wash the floor. If you must wash the
windows.
To make
matters worse I am now paying rent in the place I am staying and on a unit with
the Housing office ( which has no one in it) plus I am paying the utilities on
the place. Because if they run power or water past your property they are
providing you with a service so they bill you for that service weather you use
it or not. Then I have the facility here losing my clothing which has all been labelled
when lost I have to replace it. What pension I get has now gone before I get
it. The coordinator does not care she thinks it’s all in my head. Yet I can
show her all because of a paper trail bills paid and so on.
Kanga
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Kanga, your situation sounds so incredibly unfair and frustrating.
That is so annoying the cleaners can't just come in and clean but I suppose there are so many regulations and paper work and in the end it means you miss out.
I am not a fan of peas or pea soup.
Is there a consumer advocate you can ask for help? I am sure you probably have tried before but it really does seem unfair.
Quirky
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Personally I have gone down that many paths my shoes have worn out to the knees. I don't know where to go now.
Kanga