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Trapped in supported accommodation

kanga_brumby
Blue Voices Member
Blue Voices Member

I have various people on my team supposedly helping through my depression, and other issues I have. They requested I go into a care facility for a one month stay. Which I agreed to fully expecting to return home about one month after. As soon as I mover in to the place there attitudes changed. All of a sudden I had to stay in the supported accommodation. Because I was not going to be supported in my home. Even though the support I need is available from various agencies. Around Melbourne by various counsels or privet agencies. Providing attendant care and home help. I believe I should be eligible for funding for disability. I have raised this with the people who are my advisers. But get caned every time I am not consulted. About the decision I am told just sit back do as we say. When your ready we will help more then. The plan i am not consulted on it's not working it's just stagnating. My family are no help. I am that fed up where I am. I am rely contemplating ending it all my life has no meaning in here. Just a worthless piece of meat that gets treated like a 3 year old. I know a warehouse full of stuff. That no one can now use. I cannot help anyone in here not even myself I'm not aloud.

Kanga

273 Replies 273

Hey Kanga

Can I ask why your family doesnt want to help?

You mentioned a while ago that you had support from management after you made them aware that you were doing it tough...Have they been of any support to you?

Excuse I for the questions Kanga...just trying to understand if thats okay

My Kindest always

Paul

If you can tell me why my family are not helping that would be great Paul. I call them Drop them an E mail to busy to talk no reply to emails. I get small stretches of stuff from management. but because It's out of the unusual requests for clothing No one else asks them to buy cloths for them the resident buys that or their family does. I am not asking them to pay for it I do that but just get the sizing. Plus they out source the washing so its not their fault if it goes missing. mean time As I have said before I have nothing to ware the poncho I now just replaced cost 100 bucks with postage paid so that runs up a huge bill at the end of the year. I don't get Visitors at all now the out reach worker is totally invisible since I got my NDIS package I am waiting on the scooter that only just went in minimum4 weeks before I see anything there Every one says I am winning now but right now I am getting less and have been getting less for about two months I was told by the case worker The out reach worker and her would now have less to do with me because I have NDIS funding. Yet I was under the impression they would be there with me beside me till I returned home Yet no one cares My family have proved that It looks like I am in danger of being homeless If that is the case I have lost my kids for ever I will be trapped in here forever I will then have to renegotiate with people to find a different place I know the type of place all ready and I will need a great Advocate to do that one My family wont do it They have proved to me I have no siblings they went bush and got lost. As my farther said a OOL

Kanga feeling fragile still fighting though

Yesterday I got a few phone calls all relating to my boy. Just over a year ago I had a conversation with most people involved. The boy is/ was no longer on my health care card provided by centerlink. Mean time back at the phone calls they are asking me for his CRN so he can get his teeth seen to for free at the dental hospital. These people have taken my boy away from me because of my poor health to care for him. But cannot organize a health care card. to care for his health. I no longer get payments for his upkeep, yet am expected to pay for his medications, and schooling. There is no answer to this. it is just a statement of fact. Its not the fault of the carers they assumed the boy was still on my card. Yet he is the one not getting his teeth seen to.

Kanga

Hi Kanga

I really feel for you and your son. I know you have explained whats happening Peter...I just dont understand why your family are not supporting you. This is very sad.

Since this is your thread I hope you dont mind if I ask you what level of support/counsel you are receiving from management?

You mentioned " I don't get Visitors at all now the out reach worker is totally invisible since I got my NDIS package".........When you can Peter....can you explain this to me?

Im sorry that my reply has taken so long...I am usually pretty quick at getting back

Thankyou for speaking from the heart

My kindest always

Paul

Captain Paul since getting the NDIS package my mental health coordinator has informed me. The only contact she will give is in coordinating services within the NDIS package. Plus the outreach worker will be restricted, as his funding will now come out of the NDIS package. There is only so far the funding will go. So I am now getting less support. After struggling for so long, them saying let us take it over. Then them stuffing it up when they do. So either I have to fix it or my family has had to. As a result my siblings don’t wish to know me, because they have their own shit to deal with. Plus when I was dealing with it alone no where as many stuff ups happened. Yet the support workers keep putting their noses in there making more work for all. With me thinking I am better off alone, without their help. Yet where I am I have never personally been before. So I am feeling fragile not knowing who is really going to help guide me out of here. If I was in the bush I would have a better chance I usually know where and what to do. But I am not used to not being able to clean my home, cook meals, get from point A –Z without aid. Independence was me I can find my way about orienteering without a compass, all I need is a map. Dam it. What is happening around me right now I have never been. The Mental health workers made me rely on them. When I did, they pulled the rug out from under me. So from here I will have to start to reorganize my life to where I had it before. Can do with minor adjustments to accommodate a scooter, and people coming in to clean house. Entertaining myself I know some places all ready plus I have found a few more recently.
Peter

Today I am filled with dread. I am scared tomorrow I have to return home to let someone into my home to see it. Them going in is not the problem, nor is it the state of the house. It's a cold lonely house, no friends in there, no family, no nothing. Because of my knees there is only one way in and out for me. But I am scared I may fall at any stage. I don't have my mobility scooter. If someone I knew was to be there I would have more confidence and even more if I had the scooter. But someone I knew would be enough for now. I have contacted every one I know all busy with work, school, or just don't give a flying cow. Belgium man Belgium. Not even my own family. Never in the history of man has a man been so alone in the middle of a city as I feel now. My mental health worker doesn't care, the out reach worker has gone off on holiday and knew it was coming up. They are supposed to be there supporting me but no one is I am supposed to be home now that was the guarantee but it's like they only care about themselves. I am a nothing.

kanga

All went as I expected the bloke viewed the house. Was impressed with the size of the lounge room, bathroom laundry shower area and bedroom. Now waiting on the word on my scooter and care team with out those all this waiting and finagling and not being with my kids has been for nothing.

The way I have been treated recently by so many different groups and people. I thought 12months ago I had hit rock bottom. I found a hole new low. A hole new low point to play hand ball against.

Kanga

Hey Kanga

It is great that the dude was impressed with what he saw.....Thats a huge bonus.....

Your mobility scooter is a huge part of your freedom....In a nutshell....can I ask if they have a waiting period/bureaucracy issue happening? Or do you just have to wait?

This is a serious pain Peter...I dont understand as I have never (thank god) been through it

Do you have a rough ETA when you will hear any good news?

My kindest always Kanga

Paul

Captain Paul Harar with bureaucrats you never ask how long a piece if string is. Because either you wined up with cake or you get egg on your face. Remember the English TV program "Yes minister" or "Yes Prim Minister" about a member of parliament dealing with a English bureaucrat. Every time the minister wanted some thing done by the bureaucrat. The bureaucrat would word it this way and that change it to suit the bureaucrats. That's where I am the minister trying to get the bureaucrats to do what I want and them saying this and that slowing the whole process down to a ridiculously slow pace that makes a snail appear to be travailing at light speed. I am exhausted trying to get them to move pieces of paper to the top of a pile. Oh that's right one piece of paper is a health risk. They may get a paper cut.

Kanga

 

Hey Kanga

You just nailed it.....with one word....Bureaucrat....I must be losing my touch to forget that 'word'...ewww

We wouldnt them to get a paper cut...would we?

Do you have any good news that you can share? If not no worries Captain Kanga

My kind thoughts

Paul