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Rheumatoid Arthritis and Depression - How Do You Cope?
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Hello Everyone....and Readers of the forums too!
I was only asking as I have a close friend that has Rheumatoid Arthritis and has developed clinical Depression/Anxiety as a result. I have had chronic anxiety followed by depression for years and doing okay..... yet am at a loss where Rheumatoid Arthritis & depression is concerned
Any advice/counsel would be greatly appreciated on how people cope with RA and Depression/Anxiety
Thankyou for taking the time to read my post 🙂
Paul
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Hi everyone....any new input from new members is also welcome and appreciated 🙂
Thankyou Elizabeth and Quercus for your help so far
Can I ask if anyone has a friend or relative with Rheumatoid Arthritis (not osteo arthritis) that has given up their meds and found relief with natural remedies?
I have 36 years of experience with clinical anxiety and mental illness yet I have absolutely no idea on RA
Any help would be greatly appreciated 🙂
My best always
Paul
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Hi Paul, I only wish I could help you but will endeavour to ask around to try and find at least something that will ease the constant pain.
Best wishes.
Geoff.
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Hi Paul,
The idea of natural remedies is something I do lean towards but as someone who lives with autoimmune arthritis I am cautious.
I once had a friend encourage me to see a natropath and combine natural supplements with a cleansing diet. The theory was that because my illness is caused by my body attacking itself and creating joint inflammation a cleanse could 'reset' my immune system. Natural therapies are facinating and do help many.
The vital point though....
We don't know what will work for us. Everyone is different.
It truly comes down to whether your friend willing to take the risk of stopping meds and an increase of inflammation, pain, reduced mobility and the risk of permanent joint damage?
My medications are far from perfect and have side effects I hate... but I remember the alternative so vividly. Facing the reality that I was desperate and in so much pain that I tried anything out there. And yet I was facing a wheelchair at 30 years old.
For me the idea of natural therapies are good in addition to meds but the risk outweighs anything else.
When you stop a medication there is no guarantee it will work if you return to it again later. This is a huge risk that needs to be discussed with their rheumatologist.
TENS machines, physiotherapy and stretches all help me during huge flares. But the reality is if I stopped my injections in a matter of weeks I wouldn't be able to walk and that sends me back to where I was... suicidal.
Whatever your friend decides I strongly hope that it is under the direction/supervision of their rheumatologist!
I hope others reply too and Geoff finds some info too.
❤ Nat
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Hi again Paul (and anyone reading),
I wanted to bump up this thread in the hope someone reading had more advice on managing RA and depression.
It is funny how when pain is managed and physical restrictions are reduced we forget so very quickly how deeply physical and mental health are tied together. Even in my last post I had forgotten how badly I fall apart when in severe pain.
Even on meds sometimes you hit a flare up (or meds stop working). Or new joints are affected. And just like that your mental health takes a dive.
That is where I am at. It has been a week of hell waiting until I could do my injection. Both knees are stuffed as usual but joyously both hands decided to join in too. So moving has been hard.
I wanted to suggest something I found this week...
Don't push through the pain.
Yes movement helps to losen up the joints and reduce some pain. But rest is also required to reduce the inflammation.
Let people see the worst.
This has been a huge error of mine this week. Hubby and I have been fighting like mad. I didn't realise he had no idea how much pain I have been in this week.
I carried on as normal. Helped paint the house. Moved furniture. Went to work gardening and cleaning. He would ask if I could help and I said yes because it had to be done. He would go to work and didn't see the effects. I said nothing and just hid the pain.
Don't rely on meds as a cure all.
That's where I am at. Injection day finally and I am clinging desperately to the hope that tomorrow I will be able to straighten my fingers. Or get out of bed without having to use my elbows.
It is ridiculous how much I am holding on to the hope that the meds will work. And if they don't? What then?
Does anyone have any ideas? I am kind of teary and so bloody sore.
Nat
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Hey Quercus
Thankyou for your inspirational post and being able to provide some serious support on this awful auto immune illness and the depression that can spawn from it.
My friends fingers are nearly horizontal when she hold her hand up.....Its bad (sorry...no words that I can use)
My brother was also diagnosed with RA and was on Humira until he stopped taking it after having an aggressive skin cancer removed from his foot..ugh!
I really appreciate you bumping up this thread as its not only a physiological illness....the psychological remafications can be just as problematic with sufferes of this crap illness
You have spoken from the heart as usual Quercus....I will find the name of the 'treatment' (meds) that my friend is using now.
my kind thoughts and appreciation
Paul
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My husband had PTSD and I don't think he gave a hoot I was in pain. He spent his days in front of the TV. Nothing got done around the house unless I did it myself and sometimes I just couldn't - flushing the toilet hurt let alone running the vacuum around. He'd sleep in while and Mum would come over to help me get dressed for work. His favourite mongrel act was to deliberately tighten the jars and then sit back and watch me cry tears of frustration trying to open them. He could be violent too and one night I ended up on the floor and I just couldn't get up - I had to lay there wondering if he was going to come back and put the boot in. I'm so glad he's gone now and that's where I find a sense of achievement - even with RA I was strong in spirit if not body.
Of course, eliminating a husband is a drastic move and not for everyone 🙂 - but you could try cutting out wheat instead. That works for me.
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Quercus said Let people see the worst. I think that communication is essential & that includes letting people see what is really going on. Sometimes stubborness is essential to be able to push through the difficulties such as those caused by certain illnesses but that stubbornness & pride can stop you from letting others know what is really happening to you with disastrous results. I don't have RA but I've had other issues & I have sometimes pushed myself too far rather than admit that I'm struggling. That has led to me being unable to walk & in severe pain for several weeks & then long periods getting back to normal. It has also put huge strains on my relationship with my husband because he doesn't understand or doesn't help when I need it or says the wrong thing.... The reality looking back is that I expected him & other family members to understand what I was going through & then blamed them for my problems caused by being too proud to admit I I wasn't managing because or my long term shoulder & back problems.
Of course if you have a husband who deliberately makes things worse then leaving him is the only sensible option but too often for me the problem is you putting on a brave front & doing what you can rather than letting him know what is happening until the damage is done.
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Hello GRT123 and a wave to ElizabethCP!
Thankyou for helping out on this thread. Im sorry that you have doing it hard with your husband as you mentioned above. PTSD is never an excuse for abuse....emotional or violent. Its just not on...I hope you have some peace soon.....
Thankyou for your help with RA.....You mentioned dumping wheat from your diet and that it worked. Did it reduce the pain/fatigue?
you are not alone here GRT123
my kind thoughts
Paul
I hope you can stick around the forums when convenient for you GRT123
my kind thoughts
Paul
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Hi GRT123
I hope that you are doing okay at home after what you have been going through...Its unacceptable
I really appreciate your help/experience with this awful auto immune illness as the people I know all eat wheat (bread mainly..wholegrain) and have clinical depression after trying to work out their meds
You have helped more people than you know. I am trying to help a handful of people that have depression as a result of this illness
Any other tips or information are welcome GRT ....at your convenience of course
you are a legend and thankyou so much!
my kind thoughts for you
Paul
