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Staying/Getting/Doing Well – Moving goalposts or fixed target?

Paw Prints
Valued Contributor
Valued Contributor

Hi, this is my first post, though I have been reading the forums for some weeks. I’m probably expressing myself badly when I say that I have found reading about other people’s journeys reassuring. Finding a community of people who “get it” even when they have a wide variety of experiences and lives lived is not something I thought I would ever find.

Though people talk about getting well & there is a section Staying Well, I’m curious as to what this actually means to other people and how they manage their expectations. I noticed some people refer to being well as ‘being like themselves before they got ill’, whilst others don’t express an exact aim.

My idea of being well has changed over the years. I was first diagnosed as an 8 year old child back in the late sixties. The doctors told Mum that the voices in my head & the sudden crying bouts were because I suffered from ‘nerves’ & I was given meds to calm me. Of course such things were not discussed back then & I was told not to talk about it to anyone, not my school friends nor siblings, just Mum. For decades after my idea of being well simply meant being able to hide my illness from others.

A number of events in my life caused my illness to worsen, until some years ago I became so ill I needed to be hospitalised for my own safety. This lead to my current diagnosis of Major Depression, Anxiety & PTSD. I’m no longer in that dark place, but each day is still a battle (though I can now believe in a future). For now only my siblings & one friend know about my illness, though some things they still don’t know.
So, what does ‘being well’ mean to me, it is ever moving goalposts. If you had asked me 5 years ago would I be as well as I am now I would have thought it impossible as I couldn’t envision a future. If you had asked me last week (during one of my down periods) I would have said my progress was all an illusion & I was fooling myself that things can get better.
For now my idea of being well is being able to believe that things can change for the better, that I will one day be able to manage the everyday things like housework, caring for myself & caring for my dog & maybe, just maybe I will even be able to enjoy myself.

Paw Prints
**I took the tip to give myself time to write my post by writing on a word doc & then paste it.

1,551 Replies 1,551

Hi paws Grandy everyone

I don't like daylight saving the days are too long when it's hot and my routine is all thrown out too!

It looks like fully vaccinated people will have more freedom soon. We'll still have to be careful though.

I am slowly decluttering the house. I try to do a little bit each day. It makes a difference!

The friend who was abusive emailed me to give her a ring but I feel unable to trust her ever again not to become nasty again so I have told her that and said I'm not prepared to risk being upset by her again.

She lives a very long way away now in Queensland and I feel safer keeping a distance from her.

A lovely day today and Sam and I shared an ice-cream in the park!

Paws you're amazing putting the furniture together I can never do that!

Hugs from us here 🤗💖🐳🎶🏖

Hi Paws

Sorry to hear you’re having trouble sleeping, that sounds unpleasant. I wonder if lavender on your pillow or meditation/relaxation before sleep might help you relax and ward off the dreams? If you sleep during the day do the bad dreams stay away? A bonus you putting together the flat pack though? What did you decide re the handles?

My last plant purchases were agave. They seem pretty hard to kill! Though I also just bought another indoor plant along with a nice pot with an Aboriginal design on it for my desk at prac. I’m happy to hear your new plants are surviving.

You may remember me telling you about the gorgeous Kings Park Royale kangaroo paw I bought (that is now dead). Well, Kings Park have just created a new variety - and it’s blue!!!! Oh my gosh is it lovely! It’s meant to be quite hardy too which would be good after my last experience. It’s not available til mid next year but I’m so excited. Do google if you get a chance! 🙂

And yes, snails are a problem here too - though not indoors lol. They ate my pea plants. Little rotters.

And your stove! Oh gosh!

well big hugs from me to you, and a kiss on the forehead for your lovely big boy x (does he like kisses?) Katy

Hi Paws

I'm sorry to hear about the bad dreams. I find I get them if something is bothering me during the day. Can you play soothing music before you go to bed? I always have some playing softly at night.

I play harp music on my little tablet and it sends Sam to sleep almost instantly!

I must look up that kangaroo paw!

Hugs 🤗💖🐳🦜🦄

Paw Prints
Valued Contributor
Valued Contributor

Hello Grandy, Katy, Hanna, Deebi,

Grandy I've often wondered why snails & slugs were created too... horrible little blighters... I guess something must eat them...

I don't like to sleep with the the tv or other noise on as I can find it triggering... I have slept on the couch, but only during the day whilst Woofa is on his bed in the sun... as Woofa usually joins me on the couch once it gets dark... trying to sleep on it at night when he is on it I often end up resembling a pretzel...

I watched the program on SBS tonight How to Live Younger... tonight was about how the gut biome can affect health... some of it was interesting... but some of the studies quoted used such small samples of people that the results should not have been presented as proof of the point they were trying to make... it also really bugged me whenever they said "some scientists have found blah blah", thereby highlighting some studies but completely ignoring other studies that have found otherwise... maybe I expect too much of our public broadcasters, but I do expect them to have quality science programs. ok that's my grumble for today.

Well I won't be entering the covid lottery as much as $1million would be nice... I don't feel having to do an interview (via zoom) with the promoters & to allow the promoter to publicise my private details if I win is worth it... anyone else thinking of entering?

Hugs to you all

Paws

Paw Prints
Valued Contributor
Valued Contributor
I'm struggling tonight... my elderly relative wasn't considered too old to have surgery last year because of gall stones... they have now diagnosed a tumour on one of her internal organs... forget surgery to remove it... she has just been told she is too old for them to even do a biopsy for her to know if it is malignant or benign... I honestly believe this decision has more to do with our hospitals being overwhelmed with covid patients than it has to do with her age... it is so unfair

Paws

Im so sorry to read this devastating news for you both. Is she able to seek a second opinion?

Im sending you the biggest hug. Not fair at all. Katy

Thank you Katy,

She doesn't have private insurance so is stuck with the public system.

Hi dear Paws,

I'm so sorry to hear about your relative, that's awful news. You sound as though you care about her very much so she must be important to you.

It's so hard to feel helpless at times like this.

I'm not sure if they think biopsy is too dangerous or if as you say it's due to covid, I wondered that myself as I read your post.

Does she have anyone who can talk with the treating doctors about the situation? I imagine she badly needs support and advice from other people who care about her right now.

Are you able to talk to her by phone? Even if she is in the hospital she should have a phone. Is there other family you can talk with about what is best to do?

I'm so sorry you're upset and worried. Big hug! Warm fluffy one from little Sam and doggie kisses!

I'll come back tomorrow morning to see if you've posted anything else.

Don't despair yet, I'd try to find out more if you can?

You know we'll all support you here, you have friends here for you!

Hug hug 💗🌹🌺💐🏵👩‍❤️‍👩💞

Paw Prints
Valued Contributor
Valued Contributor

Hello Hanna,

She has her son's looking out for her.. I spoke with the son who lives with her as her carer... they have tried over the past month to get her looked at elsewhere as has her GP with no luck... she was sleeping when I rang so I wasn't able to talk with her...

Hi. Paws

Can you try to speak with her and her sons tomorrow and see if you can find out a bit more?

Get some rest tonight as there's nothing you can do now. Let us know tomorrow if you've been able to get through to them and what they say.

Rest up for now. 🌹🥀💞