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Any fellow CFS (chronic fatigue syndrome) sufferers?

blueangel
Blue Voices Member
Blue Voices Member

Hi Everyone 🙂

 So I've had chronic fatigue syndrome for about 13 months now and honestly I can't remember what it's like to feel energised and not tired (ugh so over it..). I exercise daily, eat well (most of the time haha) and have quite bad caffeine habits (on average I have equivalent of 8-10 cups of coffee per day) but I'm feeling extra somnolent of late and need some new ideas.

Any advice or suggestions would be awesome!

 

41 Replies 41

Olliepearl
Community Member
Hi I have RA and CFS plus anxiety and depression. Fatigue is incredible and has ruined my life. It is difficult to get out of your own head when you are constantly in bed from fatigue. I sympathise with you and wish I had answers. It’s good to know I am not alone. If anyone can give advise regarding how to continue to face each day when every day seems the same. Others seem to get joy from the everyday of life but I do not.

hi,

I'm sorry you're feeling so bad. I'm not having a good day myself. Just so fatigued and aching. Had this 18 months and it's so hard to stay positive.

I do all the right things, pacing, try to sleep well at night, yoga Nidra practice. There's a good site called recoveryfromcfs.org that has a lot of good advice, also Emerge Australia and other state CFS groups.

But despite that, when I crash without warning or really knowing why it is really discouraging. I have to remind myself that I have some days that are relatively good, and try not to wish that I could be back to normal.

no, you are not alone, but you do need help. Can your GP give you a referral to a Medicare rebated psychologist. They only give ten sessions, but it is a start. Some bulk bill, and it would be good to find one of those. Perhaps ask beyond Blue for advice on this?

its usual to get depression with this illness, and you need to address that.

Warmest wishes.

jo