Misophonia & Intermittent Explosive Disorder - we're not alone!

[Angelite78]

Hello world! I have started this thread to connect with other people who suffer Misophonia and IED. I used to think I was the most intolerant person and the way I saw myself was depressing (and embarrassing!) but now that I know that it's not something that is just limited to me, it's not an "evil" trait and that there are others who feel similarly - this is where I would like us to come together to feel safe and hopefully a little comforted. I would love to hear from anyone out there who can relate.....

[isthisreallyme]

Hi All,

I'm 39 have dealt with Misophonia my whole life and it's only been the last few years that I have even heard of misophonia. When I found the article it finally felt like someone else knew me and I finally felt like understood for a brief moment. Recently I have found myself having fits of rage for no apparent reason and anything can set me off. I googled fits of rage and found Intermittent Explosive Disorder and I felt the same feeling of finally someone understands me.

Can you please share some strategies that you use to help manage IED and if any of you have found any organisations that have been able to assist.

I need help, this is ruining my relationship.

[Sophie_M]

Hi isthisreallyme,

Welcome to the forums, and thank you for sharing here. It sounds like you’ve been going through it for a while, but we agree, finally feeling understood can be enormously impactful.

Some of our lovely community members may be able to relate to some of what you’ve been going through and be able to share some of the wisdoms that have helped them, however it can take a while for people to respond to new posts on threads that are a few years old. That's why we'd really recommend starting a thread of your own to share more of your story and be more likely to hear back from our amazing community. 

If you want to talk through what you’ve been feeling at any time, the Beyond Blue Support Line is here for you 24/7 on 1300 22 4636, or online.

Thanks again for sharing, it’s not always easy so we hope you can be proud of having taken this step.

Kind regards,

Sophie M

[IED_GURL]

Hi, I am a woman that has IED and I thought I would reply to this post as, from what I understand, IED is not very common as far as mental disorders go...it's certainly not as common as ADHD or Bipolar Disorder, and nowhere near as common as most anxiety/depression-related disorders...and so I figure that introducing myself as a sufferer of this disorder may help others to understand people who do have it and more to the point, understand more their actions and behaviors, being a direct result of suffering from this disorder...rather than the person being judged or thought of as a  "cruel" person in general,  without any care of or feelings towards others (especially those closest to them)

I have lived a life, which, to say the least, has been anything but content and happy...partly because of events outside of my control causing me immense grief and depression, from the age of 19 years old and partly because of the IED I first suffered with, from about that same age.

Each sufferer of this disorder would have their own unique experiences which have directly resulted from IED and so, is mine...although I really don't know how to begin to talk about it as I've spent the better part of 30 years not discussing it because of the shame and embarrassment Ive felt as a direct result of my actions towards others whenever I had one of my brief episodes of rage...I will certainly try to share my story so that people may learn a little more about this socially deforming control disorder but I think, for now, I'll leave it at that and just say hello 😊to everyone in this forum and it's nice to meet you all...I will post again in the near future...and take care for now 😘

[Guest_1584]

l've had something like this my whole life too 50s now and have spent it all trying to tone myself down and just chill the hell out. l'm a tall guy to fairly strongish for lack of a better term too and so a side effect was also it just not being fair on most people. lf l go off l kinda just forget who they are and to ease off and so it can be scary and intimidating but that's the last thing l'd want.lronically my ex was only 5ft though but with a whiplash tongue and temper and she was scary as hell haha. l've always actually tried to humble myself down with most people bc l;m being bigger than most people and especially women and l've just never ever wanted anyone to feel intimidated in any way or unsafe or threatened .

But anyway , l've spent my whole life working on quick temper and happy to say that over the yrs l've learnt to tone it right back or chuckle things off and besides, most of them later are just stupid and don't even matter anyway you realize, l've just gotta be a bit more reasonable.

Last 10 15 yrs l've actually turned quite chill and whateverish with lots of work and rarely get upset these days.

l'm also very careful too if l'm tiered or hungry bc l will still go off over nothing at those times if pushed so l watch out for that too.

One drawback has been though that in toning right down things like witt and responses to smartarses has let me down bc l've been too busy over the yrs holding myself back.

rx