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I'm struggling a bit
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I'm definitely struggling a bit at the moment. I recently received some very unexpected and frightening news regarding some ongoing health concerns that I've been working through. And, I now find myself in a new and unfamiliar place. I'm surrounded by people who care for me and have offered me some much appreciated support and guidance. Having said that, the news of my recent diagnosis and the physical symptoms of the illness and treatment are knocking me around. But, it's more than that - It's not just the physical symptoms that are bothering me. The psychological load has become pretty extreme - the not knowing how long or what will happen next or how bad it'll be (for both me and my loved ones). And, there's also the lack of control (the feeling of helplessness.) I'm not really sleeping and I seem to be constantly on edge. Sometimes, I'm not sure if I've got the strength to see this thing through. I'm doing what I can to make room for this new experience and care for myself appropriately (self compassion and mindfulness techniques have helped a bit, along with some time for reflective practices and gratitude exercises). But, the struggle continues. Put simply, I don't feel ready to go - I love my life and my beautiful wife and my children and all my wonderful relationships and my home and my experience of all these gifts. All too often, the physical and psychological symptoms of my illness seem to remind me of what is coming to an end. I seem to live in a strange new place now - one of extremes - a place where terrible and frightening experiences sit right alongside moments of profound thankfulness and gratitude. I don't want to let go. In the end, that's the truth of it - I just don't want to say goodbye to it (my heart aches for what will be lost).
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I think you already know you will keep up the fight for their sake.
Focusing on the here and now is what's important, and treasuring every moment with those you love will sustain you.
Peace on you. busa71, and your family along this journey.
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A couple of years ago I nearly died. I had a small bowel obstruction. I went to hospital by ambulance, was admitted to the emergency department and had laparoscopic surgery without which I would have died. During the extremely painful and frightening experience the thing most on my mind was my child. How the hell will they get on without me to guide them? It was very much an 'Are your affairs in order' wake up call. I've since sorted my Will and POA and made arrangements as best I can for my child if I'm not around. Not perfect, but the best I can do.
As a youngster I lived the devil may care, live fast die young and leave a good looking corpse lifestyle. As I got older and the inevitable finite-ness of life slips onto the horizon as something other than an abstraction so far in the future as to be completely ignored I started to think well actually... It's not a question of if, but when, for every human being that ever lived. Our control over when is limited.
I know it can come across as a bit galling when someone not currently facing any particular threat offers pseudo-sagely words because I have had some extremely stressful times in my life where no amount of rational thought could calm my 'monkey brain'.
But there's that which we can control and that we cannot. We do the best we can with the former and suffer no guilt or shame for the latter. There's nothing to fear but fear itself. And possibly my all time favorite quote that a helpful friend told me when I was distressed, "The mind is its own place, it can make heaven out of hell or hell out of heaven" Milton.
I want to delay dying as long as I possibly can and the thought of loss of my life makes me sad, but not anxious.
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Thankyou for the words of encouragement - especially the reminder to hold the moment and treasure the here and now (this seems hard on some days - especially when the chemo is knocking me around). Thankfully, I do seem to have some good days that give me a chance to catch my breath. I'm hanging in there.🙄