Mcs systemic effects organs and brain.

[Endoscopy]

Chemical poisoning at work ,has put me through every specialist to try diagnose me.

I've been misdiagnosed .only till I met a nurse with similar symptoms did she put me onto right experience doctors and clinical psychologist who deals with brain injury due to chemical seeping to brain .as there is no blood brain barrier.

It's taken me many years of endless doctors to stabilise me .my condition is chronic and disabling .I'm looking for support group of similar people with mcs.

Life is based on avoidance of many irritants .you become homebound due unknown of what will happen when you go to shopping centre or train or sudden change weather.e.g. thunderstorms asthma..organ damage .adenomas and many other damage that I can't remember have to refer to diary calender and family ....I will forget that I wrote this .unless I have constant reminder

[Croix]

Dear Endoscopy~

I'd like to welcome you here to hte Support Forum, i hpe it leads to a feeling of not being quite alone, if not here then elsewhere. My apologies if you are already familiar with my suggestions.

I'm not familiar with Multiple Chemical Sensitivity so please accept my apologies if these suggestions are familiar to you already.

The first is right here on our Forum, it is old, but maybe someone might still look at it sometimes

https://www.beyondblue.org.au/get-support/online-forums/treatments-health-professionals-and-therapie...

If it seems inactive why not leave an invite to your thread?

The second is Allergy and Environmental Sensitivity Support and Research Association Inc.

http://www.aessra.org/

I cannot vouch for this group at all as I've never struck them before, however they do seem to have some information and a moderated forum. They chage a minimum of $20 pa for concession hard holders, up to double for those without, depending.

Might be worth looking into, forum sounds hopeful.

Finally as someone with PTSD depression and anxiety I can almost relate to having to steer one's life by the symptoms and triggers, but not to your extent. I guess also for a long time my ability to remember was very poor, my phone helped a lot.

If there are things you enjoy in your life grab them with both hands. Having something pleasurable to look forward to each day helps get one though.

You know you are welcome here anytime.

Croix