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Afraid for my wife
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Dear Tony~
I'd think you are doing OK, it's just you had hoped that thing would get better quicker. From my own experience I know that things go up and down but as things get better that slows down, I would still have sleepless nights, but less often.
It is easy to discouraged, I found I was too close to judge as the changes were gradual. I'd imagine your daily diary might help there, as you count up the good days and bad days.
Another thing to bear in mind is you have only just started on a course of medication. I've taken a fair number over the years and often found that at first their effect was spotty, or not what one expected. They can take time to be constantly effective.
Have you started on your picture painting kit yet? Maybe it might relax you in the middle of the night.
Croix
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Dear Tony~
That very human urge to 'fix' things is both a blessing and a curse. Of course it depends on circumstances. If you have dripping tap then putting on a new washer pronto is good. On the other hand if a quick fix is not possible - your meds may be an example where you simply have to wait -then that urge to fix things by taking the meds can lead one to despondency when it does not happen straight away.
Some things take time, like the temptation to put one's finger on a painted wall to see if the paint is dry:) I've been guilty of that and had to do a bit of touching up!
Talking of meds it took me a long time, but eventually I became reconciled to taking them as a regular preventative, rather than just on an as-needs basis. Like you I did not want to take them if I could get away without. Actually taking them regularly really helped as most of the meds I've taken have a lead-in time, and are not designed to just be used one now and again, but as a constant.
I'm please you and your wife are closer when it comes to being aware of how you feel. There is nothing worse than feeling isolated. Do you find it works in reverse and you can tell your wife's ups and downs? To start with I did not realy but we sort of mutually became aware of each other's state as it were.
Hope the painting goes well
Croix
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Dear Tony~
When you are going though hard times of course it is about you, actuality I remember having very little room left in my mind to cope or be with others, it was all too much.
So by all means talk about what is important and affecting your life right now. As this place is where many help others perhaps in time all the unpleasant and horrible experience can be put to good use and assist another, which is something I'm doing now.
Yes, I'm doing OK thanks and I'm glad you are finding talking to you wife and mates does help.
I hope tonight you get even more undisturbed sleep
Croix
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Dear Tony~
Being told one is doing the right things can be a real boost, even if it only seems a small thing to hear. To have some of the doubt taken out of your decisions, and also out of how you view yourselves, is a pretty big thing.
You were quick with doing the room! If I could do it I know I'd take ages by the time I covered the furniture, moved the bookcases and all. Plus coming to an agreement wiht Mrs C over the colour scheme:)
I hope when you see the specialist on Tuesday he will say the remaining lung wil become more robust and your wife will in time be able ot breath easier, it may make her feel more confident and hopefully take some of the loss off you - so you can go for that walk.
Your sleep pattern may be like mine has been, not always having an easy to identify cause when it is bad, I would hope overall there is a trend towards improvement. Being rested makes a huge difference.
Actually something like colouring-in does make a difference too, just enough concentration to steer the mind, while still allowing listening ot the radio or conversation. I do something similar and at the same time listen to old British radio shows, very relaxing.
I look forward to talking again
Croix
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Hi Croix Well the appointment was bad it seems the cancer appears to have returned, she sees the cancer clinic on Thursday to review if the should offer treatment, before they said too frail, still wait ing on the PET scan date.
Last night I slept from 10 until about 2 but then had this hugh frighting PA, I had to get up for a few hours but deep breathing was very slow to kick in I went back to bed but the PA did not end until I started moving around, at 7 am today I have been very busy and I think I took the bad news better than I thought I would, I have an appointment with my GP tomorrow and will ask for a mental health plan and see a Psychologist ASAP. I had to give up on the painting by numbers as It was so hard on the eyes so now I have bought a jigsaw, I do a bit then leave it seems to help. take care Tony