struggling with special needs children

[Matchy69]

Does anyone else have children with special needs.I am struggling with mine.My youngest cant use a toilet when their at the age they should be.I am getting tired of changing them,does that make me a bad parent?The constant hyperepisodes are taking their strain especially that i am going through other personal stuff in my life

[Hanna3]

Hi Matchy,

Is there any way you can get a social worker to help you with the forms? Centrelink is a complete pain, their forms are not user-friendly and they demand so much evidence from you as well! I feel your pain!!! Could you try ringing them again in the hope that you'll get someone more helpful? I know getting through on the phone can be a nightmare too. 😕

You sound like such a caring Dad about your kids! What would happen if you took the security blanket off your daughter? I imagine great distress/meltdown? It's challenging for you as a Dad... Do you get any help from anywhere where people are qualified to assist parents with children on the spectrum?

Do you have a partner with you Matchy or are you coping on your own?

Your kids are lucky to have such a caring Dad, but I hope you get some time out for yourself!!!

👍🙂

[Matchy69]

Hi Hanna I have managed to complete the forms best they can be.Some silly questions on them.All is needed is medical evidence from the doctor and specialist and some other paper work to go with it.We have to April to summit it.

I do not have a partner and I do share my kids with my ex-wife who lives two towns away.I do most of the running around and appointments for them as my ex won't do it and I am closer to the bigger town where most of the appointments are.It makes it hard as their is a lot of appointments between the two of them.

My daughter gets grumpy and anxious if she dosnt have her blanket with her at home.She dosnt need it when she goes out just at home so when I wash it she gets grumpy that I have washed it and checks on the line to it's dry.

[Guest_1643]

Hi Mark, hope Ur son is doing ok...so,e kids pick up reading so quick and for some it takes longer.

I find centrelink difficult as well, good to have so,epme to help

[Matchy69]

Thanks sleepy.All I have do is get something from the doctor and specialist for Centrelink and hope for the best.It was such a nightmare filling out.

Some things have improved with my son in he is using a toilet now so I hope this continue as has had slid back down before with it.In school he works at his own level and not at a designated level for his grade.

[Matchy69]

It looks like form for my daughter's form will have to be taken in to Centrelink so we do that tomorrow.I have no idea how busy and how long that will take.Its a long drive into the big town and rather avoid it at the moment.We are applying through NDIS for a new laptop for my daughter's study at TAFE and Harvey Norman has someone who deals with NDIS and is helping us so that is good to find them and know that.As I look back I can see how much her needs have changed over the years and will keep changing and hopefully have some sort of life.

Take care,

Mark.

[Matchy69]

I another thing that is going to happen my kids will be more seperated then before when school and Tafe adventurally start again.I think my daughter will cope better from not seeing her brother so much and she gets a bit tired and angry with him at times.It will be more with my son being effected as he dosnt seem to cope well with changes and I noticed at the end of last year year he wasn't coping to well with the changes already occurring in my daughter's life.

[Guest_1643]

Hi Mark,

I really hope Ur daughter enjoys her course and gets the laptop.

I was told by the hospital case manager that I was eligible for a laptop and to feel out all these for,s. I askedthe deadline and they said there is none.

When I gave innthe for, they said the deadline was yesterday...

I think having a computer helps a lot to fill out forms and link in to programs. I hope she gets a good one!!!!

[Hanna3]

Hi Mark

It sounds like you have quite a lot to deal with. These constant changes to routine must be challenging for your children. The laptop would be brilliant. 8 hope Centrelink isn't too crowded!

I admire a Dad like you!

[Matchy69]

Hi Hanna and sleepy I got an official letter from the school about school starting later on the 7th of Feb.A couple of things in the letter was the school will be cutting down on staff.I hoping it's not my son's teacher aid or the special needs teacher as she works at several schools in the area.It is only a small school with 4 teachers and a principle with several teacher aids that do a great job helping out and my son has one assigned to him usually. Last year in lockdowns children with special needs were allowed at school but it only mentioned children of essential workers will be allowed at school earlier.

We will put the forms in tomorrow at Centrelink and hopefully this dosnt take to long.My daughter hasn't heard from Tafe yet to see if it's still starting on the 4th February.

Take care,

Mark.

[quirkywords]

Mark

when I worked as a teachers aide and later has a teacher of children with special needs , I really admired the parents and how they worked so hard for their children and how patient they were.
I learn much from your posts.

I hope your has a teachers aide and daughter enjoys TAFE.
Thanks again for sharing your life with the ups and downs and giving hope to others.