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Centrelink knows more than I do and I'm here 24/7
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SO FRUSTRATED!
Im a hard basket case it seems. My partner keeps having mental episodes (it's looking more like skitzopheneia to me but no one will tell me somehow Centrelink knows though just not me). He's been hospitalised 2 but at emergency 4 in the last year (No beds no immediate danger = go home despite him panicking in there over his symptoms). Meanwhile I have our under 5's at home. I can't come to any appointments because we are socially isolated = no babysitter ever. And they won't let me know anything even when he gives permisson while I'm standing there with him. How can I help him when they won't let me know what's going on.
He had the first episode while I was pregnant with my last child and did not see this coming. No one knows how to work with us and I am burnt out. I can't sleep because his symptoms keep him up all night and kids get me up early. No one wants to know. My only supports are in his family but they are already burnt out and can't help as he is not the only mentally ill person in the family. I just want help!
They won't give him effective meds and avoid med reviews they downplay everything because they don't want us on the books it feels. The police are sick of being called to check if symptoms are real. He is no help at home as he is currently ill, but ironically I can't get help because he is gentle and doesn't try to hurt us despite getting low himself, but not low enough to actually cause harm.
Does it have to become so hard that I take drastic steps before I can get help for us. Seriously if I get one more phamplet that people some how think will fix it all I'll scream. Why are we penalised for not being dysfunctional enough because we are plenty dysfunctional.
How do I get help? I don't want to kick him out I love him and I resent that people fall back on that as plan no1 of what I should do. Plus there is no reason why it should get to that with us.
Is there real help out there? and why haven't they been letting me know about it if there is? Is it funding or our circumstances? I just want him reasonably stable is it too much to ask. Any points for getting a good Medicare friendly Psych would be appreciated. Seriously it's like the whole system runs on burnout! And I mean throughout every level it shouldn't be this way.
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Ho popcorn welcome
Ive read you post 3 times and all I feel is anger in your words.
That might well be understandable but, we are sufferers ourselves with various illnesses. Can I suggest you write again spelling out exactly what help you actually need.
Its just so confusing.
Tony WK
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