Hi everyone, I'm 21 years old and I am caring for my mother who has FMD.
This is a chronic illness and as a result of a wrong diagnosis and
several bypass surgeries, my mother's leg was amputated. Over the years
the muscles in her arms and legs have ...
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Hi everyone, I'm 21 years old and I am caring for my mother who has FMD.
This is a chronic illness and as a result of a wrong diagnosis and
several bypass surgeries, my mother's leg was amputated. Over the years
the muscles in her arms and legs have basically wasted away to nothing,
she sleeps a lot during the day because she's so tired, and does use her
wheelchair more than her prosthetic leg. Mother became sick when I was
11 years old and my grandmother was originally her carer, however when I
was 17 she passed away from cancer. So that's why I took over. She needs
a lot of help with mobility and emotional support. Over the past few
years her friends have drifted away, as for the extended family...my
mother never really got along with them in the first place and we have
no contact with them now. My father and mother do not talk..and...have a
rather great dislike towards each other. I have friends I can talk to,
but I feel like this is too personal and that they wouldn't understand
anyway, because they haven't had the same experience. My mother
understandably has depression, and the lack of socialising with others
isn't helping. She feels too sick to go out, in fact she no longer even
goes shopping with me ( an activity she liked to do throughout the
week). She does cry because she feels lonely, and that she has no
enjoyment in life besides watching tv or going on the internet. I've
tried to get her involved in some art and craft activities and games to
just take her mind off about how she's feeling. I've even suggested
maybe she go online or on the phone and talk to someone about how she's
feeling, or find people who are in similar situations to talk to. She
won't have any of it. I don't know what to do to help her. Or how I can
make her life any better, it's hard to hear her cry and just see her the
way she is. My dad won't get involved which angers me. I feel like it
won't get better no matter how much I try. In between this all I study,
so I then have the stress of that as well, I don't get to socialise as
much as I would like either, most of the time I'm at home with mum and I
feel really isolated. I also feel selfish when I think about my own
problems, like socialising or maybe even meeting someone. I haven't had
a relationship in two and a half years, how can I have one if I'm
looking after mum, how can I maybe one day have kids? Who would want to
take on me and my situation? I'm worried that might never happen. I'm
just so lost.