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Grief
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My mum died recently and my husband has terminal lung cancer. Don't know what the future holds. All I know I am grieving both of them. It's hard. I've been their carer for several years.
Taking care of one feels strange. Grief is different for everyone. I cry every day. I miss my mother. I miss my husband. Who he used to be. He also has dementia.
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Hi,
Welcome to the forums and thank you for reaching out to us.
I am sorry for your loss, what you are going through is difficult at best. It is not easy to be the one doing the caring and watching those you love deteriorate. I have been a carer too, dealing with cancer and dementia. so I understand.
The most important piece of advice I think I can give you at this point in time, is to not lose sight of yourself, who you are and what is important to you. It is so easy to slip into the carer role and forget that you exist for any other reason, but you do. Carers need time out to do something for themselves as often as is possible and to try to maintain a connection to what lights you up inside. Even if that is just taking a walk, reading a book, listening to some music or a podcast that interests you. You are every bit as important as those you care for, find a way to remind yourself of that every day.
Grief will take as long as it takes and may be different for each of your loved ones. I have been through the grieving process many times and it was different each time in how long it took and how it affected me. Don't expect too much of yourself and allow the emotions to surface and pass through you, it is when we try to supress them that we do ourselves more harm than good.
We are here whenever you want to talk, please feel free to continue this conversation.
thinking of you,
indigo 🌹
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Thank you Indigo,
I've been caring for my mother and husband for such a long time. In some ways I have lost parts of who I am. I gave up a lot.
My husband is palliative and he sleeps a lot of the time. Who knows how much life he has left? I am grateful he is still with me.
Christmas is hard because it hasn't been the same with mum's and my husbands decline. Now mum is no longer here I don't feel like celebrating. Once Christmas was happy and family gathered round. So many life evidents and circumstances eroded that. When you go through a hard time you find out who your family and friends really are. I know I'm not alone in this. I've accepted this.
I'm glad I found this platform.
Thank you again for your reply and support.
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Hi Rose-,
I found out who my friends were too, it's a heartbreaking lesson at a time when the last thing you need is another lesson.
I don't celebrate Christmas, there are too many unhappy memories of my family gatherings (it was different for you clearly). If you don't feel like celebrating, don't. There is no law that says you must.
I lost a good chunk of myself also, we do give up a lot to take on that role, but it is never too late to start finding the pieces of yourself that have been overlooked for so long. Why not make that your Christmas gift to yourself this year? Start digging for the gold within.
Take as much care of yourself as you do others,
indigo 🌹
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Hi Rose
I feel for you so deeply as you face two incredibly challenging times in your life at once. I imagine the amount of emotion you're experiencing must be exhausting. I'm so glad indigo22 has met with you to offer you such heartfelt support and advice while you also helping you mentally make sense of the way forward. I've discovered only recently, since my mum's passing in May this year, that grief is not only a soulful and mental experience, it is also a physical one, which can help explain the exhaustion.
I read a quote recently, from John Green, 'Grief does not change you, it reveals you'. Since reading this, much has changed in my perception. It's had a profound impact on me. With having lost my mum, my closest friend, I can now say
- Grief has revealed to me how fully capable I am of loving so incredibly deeply
- Grief has revealed to me that I cannot thrive on the absence of soulful companionship
- Grief has revealed to me how easily I can feel a deep void that needs filling
just to name a few of the many things I am finding out about myself.
With the so-called 'Two deaths of dementia' (a family faces), there can be so much grief involved. As a person with dementia loses consciousness or conscious awareness over time (the first death), we can face so much loss. This is something I'm finding with my father. Of course, it can be far more intense with a beloved partner than it can be with a parent, for so many different reasons. My heart goes out to you so much. With my father's gradual loss of conscious awareness, I have gained more awareness or a greater level of consciousness. Again, the sense of grief has revealed to me things about myself I was not entirely conscious of, such as how much I valued sharing memories with him, how much I appreciated his ability to move around easily (now that he's unable to walk), how much I enjoyed our humorous and philosophical chats in the past. Grief has revealed just how much I value that which is now lost with him (remembering, moving, laughing, philosophising etc). The question now becomes 'How am I going to develop new ways of remembering, new ways of moving, laughing, philosophising?'.
I believe grief demands questioning. It is a tough and relentless teacher. It does not give up until we learn how to live without it. The right questions become keys for unlocking the way ahead. Indigo touches on a highly significant key, going deep within and asking 'What parts of myself am I being asked to re-turn to or turn again to?'. I'm finding these are the parts of myself I never realised just how much I loved or cherished until grief came to reveal them. ❤️
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Hi Indigo,
Thank you for your support.
I want to delete my account. I am 100% certain of this. Please let the ModSupport know this. I have emailed but not heard from them yet.
Thanks again.
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Hi Rose-,
Our regular modsupport are on leave now, but I will put a report through for you to the afterhours team. Please keep in mind that I am unsure if they are able to do this for you as I don't know what level of access they have.
I'm sorry to see you leave us, it has been lovely to connect with you.
Take care,
indigo 🌹
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Hello therising,
Thank you so much for your reply and support.
You have touched on many things I can relate to. Grief certainly reveals you. It also reveals family members, other people and friends. It's a constant fine tuning of authenticity. In self and others.
I have decided to leave this forum and I've returned to tie up loose ends.
Thank you for your support.
Take care.
Rose
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Hi Rose
So true in regard to how it reveals so much about everyone. Challenging times in many ways. Wishing you only the best on your path forward. I hope much light comes to be shed on your path, providing clarity while also filling your heart. ❤️
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