topic How do you manage your CFS? (Chronic fatigue syndrome) in Treatments, health professionals and therapies

How do you manage your CFS? (Chronic fatigue syndrome)

sjos — Fri, 21 May 2021 13:39:14 GMT

I am very new still to the diagnosis of ME/CFS (Chronic Fatigue Syndrome)

I suffer with cyclothymia - however the beginning of last year I had gotten EBV (a virus) and later diagnosed with CFS (chronic fatigue) I spent most of last year in bed / confined to my house. When given this diagnosis, my Psychiatrist was looking on 'Google' for treatment/management. I wasn't too confident with that and really have had to do my own research.

I'm wondering, if you are a fellow CFS soul - what works/has worked? how do you manage now? who do you think is worth a visit?

Naturopath that specialises in CFS? How do you 'exercise' and 'eat well' when relapsed? I have so many unanswered questions!

Thank you kindly

sjos

How do you manage your CFS? (Chronic fatigue syndrome)

Coach Craig — Thu, 27 May 2021 00:27:03 GMT

Welcome to the forum SJOS,

CFS is indeed a stressful thing to experience with the lack of energy and motivation and feeling fatigued all the time. You were seeking some support for this condition. I have attached a link to "Emerge Australia", https://www.emerge.org.au/.

They have some amazing supports available for those with a lived experience of ME/CFS, they have a telehealth nurse service, and information and support.

Just be kind to yourself, rest ensure you implement a good self care program.

Reach out of you need

Coach Craig

How do you manage your CFS? (Chronic fatigue syndrome)

Aunt Jobiska — Tue, 20 Jul 2021 04:28:26 GMT

Bridges and Pathways in SA has many online resources for people with CFS, although I think their focus is people in South Australia. I volunteered for them and there certainly are strategies that help people manage their symptoms. A chronic disease management plan with your GP might be a place to start. Eleanor Stein also has good resources - this might be somewhere to start if you have a professional background. Good luck.