topic introduction to my life in Welcome and orientation

introduction to my life

Blufftuff — Fri, 31 Jan 2020 23:50:59 GMT

Hi everyone I am new to this forum,

I would like to share a bit about my life,

I suffer epilepsy which is now medically controlled.

I the past the seizures led to other major traumas in my life which I can share at a later date.

This also led to periods of isolation, stress, and depression which I have had to learn how bounce back from.

I would love to talk to those who have gone through similar and also can someone please help me maximise the use of this forum

Thanks

introduction to my life

romantic_thi3f — Sun, 02 Feb 2020 23:44:03 GMT

Hi Blufftuff,

Welcome! I can see by your post count that you've started having conversations or joining them elsewhere - so I hope that you're finding these forums very welcoming. Jumping into posts is a big way to get use out of the forums as well as starting your own thread.

Also yes, I can relate - to all of it - mine aren't quite controlled yet but I'm doing the best I can even though I know how hard it can be. I think online forums can be a great way to get a sense of community and reduce those feelings of isolation, even just knowing that you're not alone in the way that you're feeling or what you are going through.

I hope you're enjoying it here

introduction to my life

Blufftuff — Wed, 05 Feb 2020 10:27:24 GMT

Thank you for getting in touch with me.

I am also on the Australian for epilepsy and I find that it is refreshing, as not only can we share our hard times,but we can also encourage one an other as well.

I was seizure for 12 years and 3 years had multiple seizures, and because of this, Isolated myself from family and friends which led to isolation and depression,.

Because I had been there in the past, I knew the early signs and forced myself to seek support from family and friends.

The specialist kept giving me med was on 6 which which ere not good, ended up in hospital last year unconscious and this time the mater neurology changed my meds and I am on 3 now and since the change have been seizure free which is so liberating.

Please keep in touch,

Regards.

introduction to my life

Hanna3 — Wed, 05 Feb 2020 11:48:32 GMT

Hi and welcome Bluftuff!

I'm glad you've found your way to BB! I'm just one of the people using the forums here but wanted to say hello and great that you've found us.

I'm reasonably new, I found it took a little while to get used to the different forums etc, in fact I still am... I find it helps to get involved in some of the silly games and things on the Social Site, things like movies A-Z etc, and the BB Café is good - people come and go, sometimes it's quiet there and other times lots of people are posting, there's no way of knowing I just check in from time to time. Now I know several regulars and it's great! I think you'll find a lot of help and support and company here. I'd say join anything in the Social section, the Café, the silly games, the Staying Well section, and once you get to know people it's more rewarding.

I'm so glad to hear the epilepsy is controlled now but it must have been terribly difficult to cope with previously and I can well understand how it would lead to isolation and loneliness. I hope you'll find your way around - it does take a little while to get the hang of it all - and that you'll find this a really helpful place to meet other people and get support.

So welcome again and I'm so glad you have found BB! Best wishes!

introduction to my life

romantic_thi3f — Wed, 05 Feb 2020 23:15:57 GMT

Hi Blufftuff,

That's no worries at all, I do know how much of a lonely experience it can be. I'm really glad that you have some good support around you. I'm also super happy for you that your seizures are better controlled and now seizure free! That's so wonderful.

I hope that with less seizures some of the other things are not quite so intense, like the isolation, stress and depression? How have you been managing or coping with these things?

introduction to my life

Blufftuff — Sun, 09 Feb 2020 09:55:28 GMT

Sorry did not get back to you sooner

very much appreciated and support and yes this is a forum to be on

Take care,

introduction to my life

blondguy — Mon, 10 Feb 2020 12:42:59 GMT

Hi BT!

Thankyou for being a part of the Beyond Blue forum family and posting on other threads too 🙂

Your input is just as valued as mine or anyone else's on the forums....If we didnt have new members like yourself the forums would cease to exist

Huge thanks for being here with us BT

You are always welcome to help others on the forums....only if you feel comfortable doing so 🙂

my kindest always

Paul

introduction to my life

Blufftuff — Wed, 12 Feb 2020 06:12:46 GMT

Thanks for asking as yes

The stress anxiety and depression have been something I have experienced numerous times.

Right now I am much better and learnt to recognise the early warnings.

This has opened a new door for me as now I can listen to people who are going through this terrible time

introduction to my life

Blufftuff — Wed, 12 Feb 2020 06:16:04 GMT

Hi and thank you for asking

Yes I am coping much better and have also learnt how to recognise the early signs which is great.

I find myself now listening and relating to people going through depression etc which is a passion I have had for along time

Regards

introduction to my life

Blufftuff — Tue, 18 Feb 2020 08:00:09 GMT

I think think this thread has a lot of potential, because as we share our stories, you will receive encouragement but also you may inspire someone who is going through a tough time

let keep the threads coming

regards.

introduction to my life

blondguy — Mon, 24 Feb 2020 13:18:08 GMT

Hi Blufftuff!

your thread does have a lot of potential for sure BT 🙂

I hope you are having a good week

Sometimes more people will post on a thread..(mine included) with a title that attracts other members to post their thoughts...not that there is anything wrong with your thread of course!

What do you think?

my kind thoughts

Paul

introduction to my life

Blufftuff — Thu, 27 Feb 2020 00:06:19 GMT

Thanks for getting back to me with this great thought.

Totally agree the title of threads can have a massive impact on the response we get from others,

with saying that we all still need to be willing to learn how to improve in this area

Any advice you have will be taken on board for sure, as you have much more experience than I do

introduction to my life

blondguy — Fri, 28 Feb 2020 09:43:47 GMT

Hey BT

no worries at all and thankyou BT for being kind

Its not a matter of improving anything actually...Its only wording your thread topic so other people can relate to what you are posting about...if you wish to 🙂

Just my humble opinion BT....After reading your opening post again...you mentioned " isolation, stress, and depression" Only if you wished, your thread title can reflect some of these points....

Only a example...' Isolation and Depression...Am I Alone?'....That is only an example that may engage other people to post about symptoms that are similar to yours

always listening BT...I hope some of this has been helpful 🙂

my kind thoughts

Paul

introduction to my life

Blufftuff — Mon, 02 Mar 2020 08:36:04 GMT

Thank you for your honesty and Yes I will take what you said on board.

Your examples were very helpful.